Online Education

20CE057 - Accounting for Home Care: The Role of Treatment Logs in Bleeding Disorder Self-Management

This online learning activity aims to enable the learner to gain knowledge concerning the role and importance of treatment log-keeping for hemophilia home treatment; different types of treatment logs and their features; patient/provider viewpoints on treatment logs; and the clinical and research application of these logs.

• Review three variables associated with improved outcomes for persons with hemophilia
• Describe the initial concerns about home treatment of bleeding disorders and the underlying need to maintain a record of treatments administered
• Differentiate paper and electronic treatment logs
• Identify an application designed specifically for women with bleeding disorders to track symptoms of and treatments for heavy menstrual bleeding
• Examine the ideal features of a mobile application to improve self-management among persons with bleeding disorders
• Discuss patient viewpoints concerning treatment logs
• Introduce potential applications of treatment logs in clinical practice

Nurses, nurse practitioners, and other multidisciplinary hemophilia treatment center staff engaged in the care of persons with bleeding disorders who utilize home treatment to manage or prevent bleeding episodes

This online learning activity is concerned with maintaining records of bleeding disorder treatments administered at home. It starts by describing the evolution of bleeding disorder treatment to the home and early providing concerns about home care. It then differentiates paper and electronic treatment log systems and lists several examples of both. It also identifies methods for tracking heavy menstrual bleeding and other symptoms among females with hemophilia and carriers. The activity goes on to consider the ideal features of a mobile application to improve self-management of persons with bleeding disorders. Finally, the activity discusses patient viewpoints on treatment logs and introduces potential applications of treatment logs in clinical practice.

• Natalie Duncan, MPH

June 9, 2020

5:00 PM Eastern, June 9, 2022

The estimated time to complete this activity is 45 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 70% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is provided for 0.75 contact hours under ANCC criteria.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

19CE069 - Genetics of Hemophilia

This online learning activity aims to enable the learner to develop knowledge to provide accurate and appropriate information to patients and families affected by hemophilia in need of detailed and specific information about their genetic history and the implications it has for future medical decisions.

• Discuss the primary purpose for undergoing genetic testing in hemophilia
• Compare the prevalence rates of hemophilia A versus hemophilia B
• Describe the two main inversions that cause hemophilia A
• Explain how a point mutation can lead to hemophilia
• Assess the mechanism by which hemophilia and type 2N von Willebrand disease have the same phenotype
• Explain the most common mutations seen in hemophilia B
• Discuss how hemophilia B Leyden patients can become clotting factor independent in early adulthood
• Examine why some female carriers of hemophilia have bleeding symptoms and some do not
• Explore the mechanism by which two unrelated males share the same disease severity

Nurses and other health care professionals at U.S. Hemophilia Treatment Centers (HTCs) who are interested in learning more about the genetics of hemophilia.

This online learning module is concerned primarily with the genetic epidemiology of hemophilia, including the specific genetic mutations that cause hemophilia A and B, the relationship between hemophilia genotype and phenotype, genetic causes of bleeding in female carriers of hemophilia, and the importance of undergoing genetic testing.

• Anne Goodeve, PhD

September 9, 2019

5:00 PM Eastern, September 9, 2020

The estimated time to complete this activity is 60 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 70% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

This activity is provided for 1.0 contact hours under ANCC criteria.

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education has been awarded Accreditation with Distinction, the highest recognition awarded by the American Nurses Credentialing Center's Accreditation Program. This distinction is valid through 2020.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

Hemophilia 101 for Nonclinical Staff at HTCs (non CE)

This module is designed to provide information about the U.S. federally funded hemophilia treatment center (or HTC) network (referred to as USHTCN) and the multidisciplinary comprehensive care provided at HTCs. The module also reviews the key concepts of data collection and research at HTCs. Providing an overview of the scientific precepts of hemophilia, the module further explains how data and clinical care are integrated and pertinent to the important role of nonclinical staff at HTCs.

• Identify different parts of the federally funded U.S. HTC network
• Examine key components of the hemophilia comprehensive care model
• Review data collection requirements for linking the comprehensive care model to health outcomes
• Explain general scientific precepts of bleeding disorders
• Evaluate how data and clinical care are integrated and pertinent to the role of nonclinical staff

This module is designed for nonclinical professionals in the HTC network, including data collection personnel, administrators, HTC staff interacting with 340B programs.

This module is divided into three sections:
Section I covers the U.S. Hemophilia Treatment Center Network (USHTCN) and the multidisciplinary comprehensive care model practiced at HTCs,
Section II reviews the data collection and research at HTCs, and
Section III discusses the clinical and medical issues in hemophilia at a 101 level and the importance of these issues to nonclinical staff.

• Brenda Riske, MS, MBA, MPA
• Regina Butler, RN
• Jim Munn, RN, MS

January 30, 2015

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

19CE063 - Hemophilia in History I: Early Accounts and Interventions

Upon completion of this program, the learner will be able to demonstrate knowledge of the early historical context that informs our modern understanding of hemophilia. Such knowledge is expected to enhance compassion of hemophilia providers toward patients and to facilitate high quality care.

• Interpret the historical records that represent the earliest known observations of hemophilia
• Differentiate the models of coagulation in terms of nomenclature utilized and pathways depicted
• Identify early compounds or products utilized in the treatment of hemophilia
• Explain the appearance, spread, and disappearance of hemophilia in the royal families of Europe

Clinical staff including nurses, social workers, physical therapists, pharmacists, and other multidisciplinary providers involved in the management of persons with hemophilia receiving care in the federally recognized U.S. Hemophilia Treatment Center (HTC) network

This online learning activity includes discussion of the historical figures and events in early conceptions of hemophilia as a heritable bleeding diathesis, of the first models of coagulation, of unproven attempts to treat the condition, of the appearance of hemophilia in the royal families of Europe, and of the discoveries that led to our modern conception of and treatment products for hemophilia.

• Natalie Duncan, MPH
• Jim Munn, MS, BS, BSN, RN-BC
• Susan Zappa, RN-BC, CPN

June 1, 2020

5:00 PM Eastern, June 1, 2022

The estimated time to complete this activity is 45 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 70% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is provided for 0.75 contact hours under ANCC criteria.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

19CE064 - Hemophilia in History II: Factor Concentrates and Foundations of Comprehensive Care

Upon completion of this program, the learner will be able to demonstrate knowledge of the recent historical context in which our modern understanding of hemophilia and its management were developed. Such knowledge is expected to enhance compassion of hemophilia providers toward patients and to facilitate high quality care.

• Discuss the early development and evolution of clotting factor concentrates
• Describe the infectious disease contamination of the U.S. blood supply and its toll on the hemophilia community
• Review legislation passed in the wake of the hepatitis and HIV epidemics
• Examine the hemophilia treatment center model of care
• Identify three variables that contribute to prolonged life expectancy and improved quality of life among persons with hemophilia

Clinical staff including nurses, social workers, physical therapists, pharmacists, and other multidisciplinary providers involved in the management of persons with hemophilia receiving care in the federally recognized U.S. Hemophilia Treatment Center (HTC) network.

This online learning activity includes discussion of the early development and evolution of clotting factor concentrates, the infectious disease contamination of the U.S. blood supply and its toll on the hemophilia community, as well as legislation that passed in the wake of the hepatitis and HIV epidemics. The activity also examines the hemophilia treatment center model of care. Finally, the module discusses the role of a safe blood supply, care from HTCs, and use of prophylactic therapy in prolonging life expectancy and enabling persons with hemophilia to lead increasingly normal lives.

• Natalie Duncan, MPH
• Jim Munn, MS, BS, BSN, RN-BC
• Susan Zappa, RN-BC, CPN

June 1, 2020

5:00 PM Eastern, June 1, 2022

The estimated time to complete this activity is 30 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 70% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is provided for 0.5 contact hours under ANCC criteria.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

20CE083 - Nutritional Considerations in Common Comorbidities of Hemophilia

This online learning activity aims to enable the learners from the federally-recognized U.S. Hemophilia Treatment Center Network (USHTCN) to develop competencies regarding the roles and responsibilities of the registered dietitian nutritionist on the multidisciplinary comprehensive care team, and to gain familiarity with nutritional considerations in common comorbidities of hemophilia, to include hepatitis C, HIV, iron deficiency anemia, osteoporosis, obesity, and dyslipidemia.

• Discuss the roles and responsibilities of the Registered Dietitian Nutritionist on the hemophilia comprehensive care team
• Examine the components of the nutrition assessment administered by the Hemophilia Treatment Center Registered Dietitian Nutritionist
• Evaluate nutrition objectives and dietary interventions for common comorbidities of hemophilia
• Identify important considerations and discussion points for persons with hemophilia regarding dietary supplements

Registered dietitian nutritionists, nurses, physical therapists, social workers, and other members of the multidisciplinary comprehensive care team at U.S. Hemophilia Treatment Centers (HTCs) who are involved in or support the nutritional health of patients.

At HTCs, patients may experience nutritional challenges related to hepatitis C, HIV, iron deficiency anemia, osteoporosis, overweight and obesity, and dyslipidemia, in addition to other comorbidities. There is an important role on the multidisciplinary bleeding disorders comprehensive care team for a registered dietitian nutritionist or other qualified individual to promote optimal nutritional health, to provide nutrition services, to make appropriate individualized nutrition recommendations, and to support pediatric and adult patients until their personal nutrition goals are met. To facilitate development of nutrition-related competencies among USHTCN staff, this online learning activity will review the roles and responsibilities of the registered dietitian nutritionist on the hemophilia comprehensive care team, the components of the nutrition assessment administered by this professional, the nutrition objectives and dietary interventions for common comorbidities of hemophilia, and the important considerations and discussion points regarding use of dietary supplements among persons with hemophilia.

• Tina Willis, MA, RDN

May 4, 2020

5:00 PM Eastern, May 4, 2021

The estimated time to complete this activity is 45 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 70% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is provided for 0.75 contact hours under ANCC criteria.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

Progression of Hemophilic Arthopathy

The purpose of this activity is to enable the learner to obtain a more intimate knowledge of the joint and the progressive degradation that occurs with recurrent joint bleeds.

• Illustrate the progression of changes that occur in a joint exposed to hemophilic bleeding.
• Describe the differences in the coagulation process between normal clotting, hemophilia A, and hemophilia B.
• Examine the characteristics of bone, cartilage, and synovium in a normal joint as well as during the different stages of joint bleeding.
• Evaluate clinical presentation and medical management in the different stages of joint bleeding

The target audience for this presentation includes nurses and other health care professionals who are part of a designated hemophilia treatment center (HTC) who are interested in learning more about the progression of hemophilic arthropathy.

The content of this animated learning module includes an illustration of the progression of changes that occur in a joint exposed to hemophilic bleeding and a description of the differences in the coagulation process between normal clotting, hemophilia A, and hemophilia B. The module also examines the characteristics of bone, cartilage, synovium, clinical presentation, and medical management in the different stages of joint bleeding.

• Roshni Kulkarni, MD
• Usha M. Reddy, MD
• Leonard Valentino, MD

January 01, 2019

NA

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.
• Please note: This program requires FLASH PLAYER. If your computer does not have FLASH PLAYER, or does not allow such files to play, you will not be able to view this program. You will need to speak to your institution’s Information Technology department about enabling or installing FLASH PLAYER onto your computer.

19CE128 - Psychosocial Considerations in Bleeding Disorder Care: Aging with Hemophilia

This online learning activity aims to enable the learner to provide competent psychosocial support to persons with hemophilia (PWH) as they navigate changes associated with the aging process.

• Describe the increasing burden of chronic disease among persons aged 65 and over in the United States
• Review the evolution of hemophilia treatment and the associated increase in life expectancy among persons with hemophilia
• Evaluate the prevalence of chronic conditions among aging and elderly persons with hemophilia
• Assess psychosocial considerations pertinent to the care of aging and elderly persons with hemophilia
• Incorporate practical psychosocial assessment strategies in the hemophilia treatment center environment to optimize care of aging and elderly persons with hemophilia

This learning activity is targeted toward social workers, nurses and other members of the multidisciplinary comprehensive care team at U.S. federally-recognized hemophilia treatment centers (HTCs) who routinely encounter adult persons with hemophilia (PWH) in need of support to navigate changes associated with the aging process.

This activity will describe the increasing burden of chronic disease in elderly Americans and the role of extended life expectancy on prevalence of chronic conditions among elderly PWH. The activity assesses psychosocial considerations in managing care for elderly PWH and recommends practical assessment strategies for use in the Hemophilia Treatment Center environment to optimize care of these individuals.

• Ellen Kachalsky, MSW, LMSW, ACSW, CCM
• Colleen Joiner, LMSW

November 21, 2019

5:00 PM Eastern, October 31, 2020

The estimated time to complete this activity is 75 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 80% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is provided for 1.25 contact hours under ANCC criteria.

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education has been awarded Accreditation with Distinction, the highest recognition awarded by the American Nurses Credentialing Center's Accreditation Program. This distinction is valid through 2020.

This program is Approved by the National Association of Social Workers (Approval # 886604222-7673) for 1.5 continuing education contact hours.

The Indiana Hemophilia and Thrombosis Center is an approved provider of continuing social work education by the NASW CE Approval Program (Provider #886604222).

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This course is approved by the Michigan Social Work Continuing Education Collaborative - Approval # 121719-01 for 1.5 continuing education hours. This approval expires 10/30/2020. Michigan CEU certificates will be issued by Lisa Clothier, LMSW, ACSW of Hemophilia Foundation of Michigan. If you have any questions about the State of Michigan CEU approval please contact Lisa at lclothier@hfmich.org.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

19CE126 - Psychosocial Considerations in Bleeding Disorder Care: Lifespan Development and Transitions

This online learning activity aims to enable the learner to develop knowledge of life skills, transitioning, and considerations relevant when working with persons with bleeding disorders across the lifespan.

• Define lifespan transition as a process of growth and a framework for studying growth
• Identify challenges to successful lifespan development in persons with bleeding disorders by influencing factors such as developmental stage, family dynamics, and cultural practices or beliefs
• Discuss interventions that can be applied in the HTC at different stages in the lifespan to support positive transition
• Review available guidelines to assist in developing appropriate care plans and interventions that support lifespan development and transition

Social workers, nurses, and other healthcare professionals at hemophilia treatment centers (HTCs) who are involved in helping patients learn the necessary life skills to successfully manage lifespan transitions related to their health care.

This program will identify challenges to successful lifespan development throughout multiple stages of life, from birth to 5 years of age to middle adult to senior years. Intervention options that the HTC can implement throughout the varying stages of life will be explored as well. Lastly the NHF Transition Guidelines will be presented and reviewed.

• Gail Jordan, MSW, LCSW
• Robert Louden, MSW, LCSW
• Ashley Parmerlee, MSW, LCSW
• Brittany Savage, MSN, AGPCNP-BC

October 31, 2019

5:00 PM Eastern, October 31, 2020

The estimated time to complete this activity is 45 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 80% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is provided for 0.75 contact hours under ANCC criteria.

This program is Approved by the National Association of Social Workers (Approval # 886604222-7622) for 1 continuing education contact hours.

The Indiana Hemophilia and Thrombosis Center is an approved provider of continuing social work education by the NASW CE Approval Program (Provider #886604222).

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This course is approved by the Michigan Social Work Continuing Education Collaborative - Approval # 121919-05 for 1 continuing education hour. This approval expires 11/21/2020. Michigan CEU certificates will be issued by Lisa Clothier, LMSW, ACSW of Hemophilia Foundation of Michigan. If you have any questions about the State of Michigan CEU approval please contact Lisa at lclothier@hfmich.org.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

19CE096 - Understanding Hemophilia

"Understanding Hemophilia" is a 6-part online learning activity that aims to enable clinicians at U.S. Hemophilia Treatment Centers to gain knowledge and develop expertise on the pathogenesis, inheritance, symptoms, potential complications, and clinical management of hemophilia.

• Describe the pathogenesis and inheritance patterns concerning the different factor deficiencies in hemophilia including the symptoms and sequelae that may occur
• Discuss the target factor levels for situational bleeding episodes in conjunction with the appropriate factor replacement protocols, prophylactic treatments, and nursing considerations in administration of clotting factor concentrates
• Review the development and impact of inhibitors on persons with hemophilia, including signs and symptoms, risk factors, treatment implications, and nursing considerations
• Summarize the MASAC recommendations on the use of Emicizumab such as the indications, management approaches, and concurrent use with bypassing agents
• Articulate the role of genetic testing in the identification of potential carriers and women with hemophilia and the hemostatic management recommendations during pregnancy, labor and delivery, and the postpartum phases

This online learning activity is intended for nurses, nurse practitioners, physician assistants, and other clinical staff within the federally recognized U.S. Hemophilia Treatment Center (HTC) network who wish to develop an understanding of basic concepts of hemophilia. The activity is particularly appropriate for clinicians within their first six months of employment at an HTC.

This 6-part online learning activity introduces basic concepts of hemophilia.

Part 1: Pathogenesis & Inheritance examines the coagulation system and processes, the deficit in hemophilia that interferes with clot formation, differences among types of hemophilia, and the sex-linked inheritance pattern of hemophilia.

Part 2: Symptoms & Sequelae distinguishes bleeding patterns and clinical presentation of hemophilia based on severity, differentiates types of bleeding episodes, and discusses physical/psychosocial sequelae of hemophilia.

Part 3: Factor Concentrates & Hemophilia Management discusses episodic and prophylactic management of hemophilia with clotting factor concentrate, different factor therapy protocols, and nursing considerations in administration of clotting factor concentrates.

Part 4: Introduction to Inhibitors explains the immune response and inhibitor development, signs/symptoms and risk factors of inhibitors, the impact of inhibitors on persons with hemophilia, inhibitor treatment strategies and challenges, and the positive health outcomes of immune tolerance induction therapy.

Part 5: Emicizumab covers the novel agent emicizumab, including its indications, mechanism of action, dosing options, lab considerations; as well as management of breakthrough bleeding, the boxed warning of emicizumab, use of emicizumab concurrently with bypassing agents, and potential considerations in the management of persons with hemophilia with or without inhibitors who utilize emicizumab.

Part 6: Carrier Considerations reviews hemophilia sex-linked genetics and introduces recommendations for the management of carriers and women with hemophilia, neonatal diagnosis and circumcision in males with hemophilia, and key considerations of postpartum management of carriers and women with hemophilia.

• Jennifer Maahs, MSN, PNP, RN-BC
• Amy Shapiro, MD

February 7, 2020

5:00 PM Eastern, February 7, 2022

The estimated time to complete this activity is 120 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 80% or better.
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center’s Commission on Accreditation.

This activity is provided for 2.0 contact hours under ANCC criteria.

This activity is provided for 0.3 contact hours related to pharmacotherapeutic content.

This activity has been reviewed by the AAPA Review Panel and is compliant with AAPA CME Criteria. This activity is designated for 2.00 AAPA Category 1 CME credits. Approval is valid for one year from 02/07/2020. PAs should only claim credit commensurate with the extent of their participation.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.