Online Education

19CE069 - Genetics of Hemophilia

This online learning activity aims to enable the learner to develop knowledge to provide accurate and appropriate information to patients and families affected by hemophilia in need of detailed and specific information about their genetic history and the implications it has for future medical decisions.

• Discuss the primary purpose for undergoing genetic testing in hemophilia
• Compare the prevalence rates of hemophilia A versus hemophilia B
• Describe the two main inversions that cause hemophilia A
• Explain how a point mutation can lead to hemophilia
• Assess the mechanism by which hemophilia and type 2N von Willebrand disease have the same phenotype
• Explain the most common mutations seen in hemophilia B
• Discuss how hemophilia B Leyden patients can become clotting factor independent in early adulthood
• Examine why some female carriers of hemophilia have bleeding symptoms and some do not
• Explore the mechanism by which two unrelated males share the same disease severity

Nurses and other health care professionals at U.S. Hemophilia Treatment Centers (HTCs) who are interested in learning more about the genetics of hemophilia.

This online learning module is concerned primarily with the genetic epidemiology of hemophilia, including the specific genetic mutations that cause hemophilia A and B, the relationship between hemophilia genotype and phenotype, genetic causes of bleeding in female carriers of hemophilia, and the importance of undergoing genetic testing.

• Anne Goodeve, PhD

September 9, 2019

5:00 PM Eastern, September 9, 2020

The estimated time to complete this activity is 60 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 70% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

This activity is provided for 1.0 contact hours under ANCC criteria.

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education has been awarded Accreditation with Distinction, the highest recognition awarded by the American Nurses Credentialing Center's Accreditation Program. This distinction is valid through 2020.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

Progression of Hemophilic Arthopathy

The purpose of this activity is to enable the learner to obtain a more intimate knowledge of the joint and the progressive degradation that occurs with recurrent joint bleeds.

• Illustrate the progression of changes that occur in a joint exposed to hemophilic bleeding.
• Describe the differences in the coagulation process between normal clotting, hemophilia A, and hemophilia B.
• Examine the characteristics of bone, cartilage, and synovium in a normal joint as well as during the different stages of joint bleeding.
• Evaluate clinical presentation and medical management in the different stages of joint bleeding

The target audience for this presentation includes nurses and other health care professionals who are part of a designated hemophilia treatment center (HTC) who are interested in learning more about the progression of hemophilic arthropathy.

The content of this animated learning module includes an illustration of the progression of changes that occur in a joint exposed to hemophilic bleeding and a description of the differences in the coagulation process between normal clotting, hemophilia A, and hemophilia B. The module also examines the characteristics of bone, cartilage, synovium, clinical presentation, and medical management in the different stages of joint bleeding.

• Roshni Kulkarni, MD
• Usha M. Reddy, MD
• Leonard Valentino, MD

January 01, 2019

NA

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

19CE078 - Improving Access to Care Through Outreach

The purpose of this activity is to explore the importance of access to care and evaluate common barriers to care faced by patients. We will introduce outreach as a model of care, including telemedicine, and review logistical and cost considerations associated with planning an outreach clinic. Two detailed case studies will enable the learner to apply information gained through this activity.

• List four potential barriers to care in vulnerable populations
• Define outreach as it relates to health care delivery
• Differentiate three telemedicine delivery methods
• Discuss considerations involved in planning and financing an outreach clinic
• Summarize the current consensus on the cost-effectiveness of outreach efforts
• Identify current barriers to care, appropriate interventions, and associated outcomes related to a review of detailed patient scenarios

This activity is intended for staff employed within the U.S. Hemophilia Treatment Center Network, or USHTCN, to include nurses, social workers, physicians, physical therapists, administrators, and other professionals who wish to understand outreach as it relates to care in vulnerable populations. The activity may also be of interest to hospital or institutional staff responsible for planning and managing outreach programs.

This module describes how the approaches to using outreach clinics may help overcome challenges to the delivery of specialty medical care to individuals with bleeding disorders.

The presenters will review the barriers to patients (geographic, cultural, economic) as well as hemophilia treatment centers (administrative, cost, credentialing) that HTC staff must consider when initiating or maintaining an outreach program.

• Marcia L. Bird, LMSW, MSW
• Brenda Riske, RN, MSN, MBA, MPA
• Brian M. Wicklund, MDCM, MPH

February 28, 2019

5:00 PM Eastern February 28, 2020

The estimated time to complete this activity is 60 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 80% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

This activity is provided for 1.0 contact hour under ANCC criteria.

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This program is Approved by the National Association of Social Workers (Approval # 886604222-2203) for 1 continuing education contact hours.

The Indiana Hemophilia and Thrombosis Center is an approved provider of continuing social work education by the National Association of Social Workers (Provider #886604222).

Contact Information

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

System Requirements

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

Hemophilia 101 for Nonclinical Staff at HTCs (non CE)

This module is designed to provide information about the U.S. federally funded hemophilia treatment center (or HTC) network (referred to as USHTCN) and the multidisciplinary comprehensive care provided at HTCs. The module also reviews the key concepts of data collection and research at HTCs. Providing an overview of the scientific precepts of hemophilia, the module further explains how data and clinical care are integrated and pertinent to the important role of nonclinical staff at HTCs.

• Identify different parts of the federally funded U.S. HTC network
• Examine key components of the hemophilia comprehensive care model
• Review data collection requirements for linking the comprehensive care model to health outcomes
• Explain general scientific precepts of bleeding disorders
• Evaluate how data and clinical care are integrated and pertinent to the role of nonclinical staff

This module is designed for nonclinical professionals in the HTC network, including data collection personnel, administrators, HTC staff interacting with 340B programs.

This module is divided into three sections:
Section I covers the U.S. Hemophilia Treatment Center Network (USHTCN) and the multidisciplinary comprehensive care model practiced at HTCs,
Section II reviews the data collection and research at HTCs, and
Section III discusses the clinical and medical issues in hemophilia at a 101 level and the importance of these issues to nonclinical staff.

• Brenda Riske, MS, MBA, MPA
• Regina Butler, RN
• Jim Munn, RN, MS

January 30, 2015

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

19CE081 - Nutritional Considerations in Common Comorbidities of Hemophilia

This online learning activity aims to enable learners from the federally-recognized U.S. Hemophilia Treatment Center Network (USHTCN) to develop competencies regarding the roles and responsibilities of the registered dietitian nutritionist on the multidisciplinary comprehensive care team, and to gain familiarity with nutritional considerations in common comorbidities of hemophilia, to include hepatitis C, HIV, iron deficiency anemia, osteoporosis, obesity, and dyslipidemia.

• Discuss the roles and responsibilities of the Registered Dietitian Nutritionist on the hemophilia comprehensive care team
• Examine the components of the nutrition assessment administered by the Hemophilia Treatment Center Registered Dietitian Nutritionist
• Evaluate nutrition objectives and dietary interventions for common comorbidities of hemophilia
• Identify important considerations and discussion points for persons with hemophilia regarding dietary supplements

Registered dietitian nutritionists, nurses, physical therapists, social workers, and other members of the multidisciplinary comprehensive care team at U.S. Hemophilia Treatment Centers (HTCs) who are involved in or support the nutritional health of patients.

At HTCs, patients may experience nutritional challenges related to hepatitis C, HIV, iron deficiency anemia, osteoporosis, overweight and obesity, and dyslipidemia, in addition to other comorbidities. There is an important role on the multidisciplinary bleeding disorders comprehensive care team for a registered dietitian nutritionist or other qualified individual to promote optimal nutritional health, to provide nutrition services, to make appropriate individualized nutrition recommendations, and to support pediatric and adult patients until their personal nutrition goals are met. To facilitate development of nutrition-related competencies among USHTCN staff, this online learning activity will review the roles and responsibilities of the registered dietitian nutritionist on the hemophilia comprehensive care team, the components of the nutrition assessment administered by this professional, the nutrition objectives and dietary interventions for common comorbidities of hemophilia, and the important considerations and discussion points regarding use of dietary supplements among persons with hemophilia.

• Tina Willis, MA, RDN

May 3, 2019

5:00 PM Eastern, May 4, 2020

The estimated time to complete this activity is 45 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 70% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

This activity is provided for 0.75 contact hours under ANCC criteria.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

19CE128 - Psychosocial Considerations in Bleeding Disorder Care: Aging with Hemophilia

This online learning activity aims to enable the learner to provide competent psychosocial support to persons with hemophilia (PWH) as they navigate changes associated with the aging process.

• Describe the increasing burden of chronic disease among persons aged 65 and over in the United States
• Review the evolution of hemophilia treatment and the associated increase in life expectancy among persons with hemophilia
• Evaluate the prevalence of chronic conditions among aging and elderly persons with hemophilia
• Assess psychosocial considerations pertinent to the care of aging and elderly persons with hemophilia
• Incorporate practical psychosocial assessment strategies in the hemophilia treatment center environment to optimize care of aging and elderly persons with hemophilia

This learning activity is targeted toward social workers, nurses and other members of the multidisciplinary comprehensive care team at U.S. federally-recognized hemophilia treatment centers (HTCs) who routinely encounter adult persons with hemophilia (PWH) in need of support to navigate changes associated with the aging process.

This activity will describe the increasing burden of chronic disease in elderly Americans and the role of extended life expectancy on prevalence of chronic conditions among elderly PWH. The activity assesses psychosocial considerations in managing care for elderly PWH and recommends practical assessment strategies for use in the Hemophilia Treatment Center environment to optimize care of these individuals.

• Ellen Kachalsky, MSW, LMSW, ACSW, CCM
• Colleen Joiner, LMSW

November 21, 2019

5:00 PM Eastern, October 31, 2020

The estimated time to complete this activity is 75 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 80% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is provided for 1.25 contact hours under ANCC criteria.

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education has been awarded Accreditation with Distinction, the highest recognition awarded by the American Nurses Credentialing Center's Accreditation Program. This distinction is valid through 2020.

This program is Approved by the National Association of Social Workers (Approval # 886604222-7673) for 1.5 continuing education contact hours.

The Indiana Hemophilia and Thrombosis Center is an approved provider of continuing social work education by the NASW CE Approval Program (Provider #886604222).

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This course is approved by the Michigan Social Work Continuing Education Collaborative - Approval # 121719-01 for 1.5 continuing education hours. This approval expires 10/30/2020. Michigan CEU certificates will be issued by Lisa Clothier, LMSW, ACSW of Hemophilia Foundation of Michigan. If you have any questions about the State of Michigan CEU approval please contact Lisa at lclothier@hfmich.org.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

19CE080 - Multidisciplinary Bleeding Disorders Comprehensive Care Team: Roles and Responsibilities

At U.S. Hemophilia Treatment Centers, care is delivered by a multidisciplinary team of health care specialists with expertise in prevention and management of complications of bleeding disorders. Best practice guidelines exist on the ideal composition of this team and expected contributions of each team member. This PartnersPRN online learning activity aims to enable the learner to develop competencies regarding the roles and responsibilities of members of the multidisciplinary bleeding disorders comprehensive care team.

• Identify three best practice guidelines regarding multidisciplinary management of bleeding disorders
• List members of the core and extended multidisciplinary bleeding disorders comprehensive care teams as identified in best practice guidelines
• Describe the roles and responsibilities of members of the core and extended multidisciplinary bleeding disorders comprehensive care teams

Nurses, nurse practitioners, physical therapists, social workers, and other clinical and non-clinical staff at federally recognized U.S. Hemophilia Treatment Centers who require knowledge about the roles and responsibilities of members of the multidisciplinary bleeding disorders comprehensive care team.

This online learning activity includes content about the roles and responsibilities of members of the core and extended multidisciplinary bleeding disorders comprehensive care teams at federally recognized Hemophilia Treatment Centers (HTCs). These roles and responsibilities are derived from best practice guidelines issued by the Medical and Scientific Advisory Council (MASAC) of the National Hemophilia Foundation (NHF), World Federation of Hemophilia (WFH), and NHF-McMaster University. Based on these guidelines, the activity identifies core team members as the physician, nurse, physical therapist, and social worker; as well as a program coordinator, case manager, administrative staff, and round-the-clock access to laboratory specialists in a specialized coagulation laboratory. Extended team members include any number of specialists either on HTC staff or by referral to community providers, including dental/oral health professionals, genetic counselors, pharmacists, insurance specialists, and chronic pain specialists.

• Susan Cutter, MSW, LCSW, MPA
• Karen Droze, MS
• Natalie Duncan, MPH
• Ann Forsberg, MA, MPH
• Nicole Hroma, PT
• Susan Zappa, RN-BC, CPN

June 28, 2019

5:00 PM Eastern, June 29, 2020

The estimated time to complete this activity is 45 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 70% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

This activity is provided for 0.75 contact hours under ANCC criteria.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

19CE126 - Psychosocial Considerations in Bleeding Disorder Care: Lifespan Development and Transitions

This online learning activity aims to enable the learner to develop knowledge of life skills, transitioning, and considerations relevant when working with persons with bleeding disorders across the lifespan.

• Define lifespan transition as a process of growth and a framework for studying growth
• Identify challenges to successful lifespan development in persons with bleeding disorders by influencing factors such as developmental stage, family dynamics, and cultural practices or beliefs
• Discuss interventions that can be applied in the HTC at different stages in the lifespan to support positive transition
• Review available guidelines to assist in developing appropriate care plans and interventions that support lifespan development and transition

Social workers, nurses, and other healthcare professionals at hemophilia treatment centers (HTCs) who are involved in helping patients learn the necessary life skills to successfully manage lifespan transitions related to their health care.

This program will identify challenges to successful lifespan development throughout multiple stages of life, from birth to 5 years of age to middle adult to senior years. Intervention options that the HTC can implement throughout the varying stages of life will be explored as well. Lastly the NHF Transition Guidelines will be presented and reviewed.

• Gail Jordan, MSW, LCSW
• Robert Louden, MSW, LCSW
• Ashley Parmerlee, MSW, LCSW
• Brittany Savage, MSN, AGPCNP-BC

October 31, 2019

5:00 PM Eastern, October 31, 2020

The estimated time to complete this activity is 45 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 80% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is provided for 0.75 contact hours under ANCC criteria.

This program is Approved by the National Association of Social Workers (Approval # 886604222-7622) for 1 continuing education contact hours.

The Indiana Hemophilia and Thrombosis Center is an approved provider of continuing social work education by the NASW CE Approval Program (Provider #886604222).

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This course is approved by the Michigan Social Work Continuing Education Collaborative - Approval # 121919-05 for 1 continuing education hour. This approval expires 11/21/2020. Michigan CEU certificates will be issued by Lisa Clothier, LMSW, ACSW of Hemophilia Foundation of Michigan. If you have any questions about the State of Michigan CEU approval please contact Lisa at lclothier@hfmich.org.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.