Online Education

20CE057 - Accounting for Home Care: The Role of Treatment Logs in Bleeding Disorder Self-Management

This online learning activity aims to enable the learner to gain knowledge concerning the role and importance of treatment log-keeping for hemophilia home treatment; different types of treatment logs and their features; patient/provider viewpoints on treatment logs; and the clinical and research application of these logs.

• Review three variables associated with improved outcomes for persons with hemophilia
• Describe the initial concerns about home treatment of bleeding disorders and the underlying need to maintain a record of treatments administered
• Differentiate paper and electronic treatment logs
• Identify an application designed specifically for women with bleeding disorders to track symptoms of and treatments for heavy menstrual bleeding
• Examine the ideal features of a mobile application to improve self-management among persons with bleeding disorders
• Discuss patient viewpoints concerning treatment logs
• Introduce potential applications of treatment logs in clinical practice

Nurses, nurse practitioners, and other multidisciplinary hemophilia treatment center staff engaged in the care of persons with bleeding disorders who utilize home treatment to manage or prevent bleeding episodes

This online learning activity is concerned with maintaining records of bleeding disorder treatments administered at home. It starts by describing the evolution of bleeding disorder treatment to the home and early providing concerns about home care. It then differentiates paper and electronic treatment log systems and lists several examples of both. It also identifies methods for tracking heavy menstrual bleeding and other symptoms among females with hemophilia and carriers. The activity goes on to consider the ideal features of a mobile application to improve self-management of persons with bleeding disorders. Finally, the activity discusses patient viewpoints on treatment logs and introduces potential applications of treatment logs in clinical practice.

• Natalie Duncan, MPH

June 9, 2020

5:00 PM Eastern, June 9, 2022

The estimated time to complete this activity is 45 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 70% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is provided for 0.75 contact hours under ANCC criteria.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

Hemophilia 101 for Nonclinical Staff at HTCs (non CE)

This module is designed to provide information about the U.S. federally funded hemophilia treatment center (or HTC) network (referred to as USHTCN) and the multidisciplinary comprehensive care provided at HTCs. The module also reviews the key concepts of data collection and research at HTCs. Providing an overview of the scientific precepts of hemophilia, the module further explains how data and clinical care are integrated and pertinent to the important role of nonclinical staff at HTCs.

• Identify different parts of the federally funded U.S. HTC network
• Examine key components of the hemophilia comprehensive care model
• Review data collection requirements for linking the comprehensive care model to health outcomes
• Explain general scientific precepts of bleeding disorders
• Evaluate how data and clinical care are integrated and pertinent to the role of nonclinical staff

This module is designed for nonclinical professionals in the HTC network, including data collection personnel, administrators, HTC staff interacting with 340B programs.

This module is divided into three sections:
Section I covers the U.S. Hemophilia Treatment Center Network (USHTCN) and the multidisciplinary comprehensive care model practiced at HTCs,
Section II reviews the data collection and research at HTCs, and
Section III discusses the clinical and medical issues in hemophilia at a 101 level and the importance of these issues to nonclinical staff.

• Brenda Riske, MS, MBA, MPA
• Regina Butler, RN
• Jim Munn, RN, MS

January 30, 2015

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

19CE063 - Hemophilia in History I: Early Accounts and Interventions

Upon completion of this program, the learner will be able to demonstrate knowledge of the early historical context that informs our modern understanding of hemophilia. Such knowledge is expected to enhance compassion of hemophilia providers toward patients and to facilitate high quality care.

• Interpret the historical records that represent the earliest known observations of hemophilia
• Differentiate the models of coagulation in terms of nomenclature utilized and pathways depicted
• Identify early compounds or products utilized in the treatment of hemophilia
• Explain the appearance, spread, and disappearance of hemophilia in the royal families of Europe

Clinical staff including nurses, social workers, physical therapists, pharmacists, and other multidisciplinary providers involved in the management of persons with hemophilia receiving care in the federally recognized U.S. Hemophilia Treatment Center (HTC) network

This online learning activity includes discussion of the historical figures and events in early conceptions of hemophilia as a heritable bleeding diathesis, of the first models of coagulation, of unproven attempts to treat the condition, of the appearance of hemophilia in the royal families of Europe, and of the discoveries that led to our modern conception of and treatment products for hemophilia.

• Natalie Duncan, MPH
• Jim Munn, MS, BS, BSN, RN-BC
• Susan Zappa, RN-BC, CPN

June 1, 2020

5:00 PM Eastern, June 1, 2022

The estimated time to complete this activity is 45 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 70% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is provided for 0.75 contact hours under ANCC criteria.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

19CE064 - Hemophilia in History II: Factor Concentrates and Foundations of Comprehensive Care

Upon completion of this program, the learner will be able to demonstrate knowledge of the recent historical context in which our modern understanding of hemophilia and its management were developed. Such knowledge is expected to enhance compassion of hemophilia providers toward patients and to facilitate high quality care.

• Discuss the early development and evolution of clotting factor concentrates
• Describe the infectious disease contamination of the U.S. blood supply and its toll on the hemophilia community
• Review legislation passed in the wake of the hepatitis and HIV epidemics
• Examine the hemophilia treatment center model of care
• Identify three variables that contribute to prolonged life expectancy and improved quality of life among persons with hemophilia

Clinical staff including nurses, social workers, physical therapists, pharmacists, and other multidisciplinary providers involved in the management of persons with hemophilia receiving care in the federally recognized U.S. Hemophilia Treatment Center (HTC) network.

This online learning activity includes discussion of the early development and evolution of clotting factor concentrates, the infectious disease contamination of the U.S. blood supply and its toll on the hemophilia community, as well as legislation that passed in the wake of the hepatitis and HIV epidemics. The activity also examines the hemophilia treatment center model of care. Finally, the module discusses the role of a safe blood supply, care from HTCs, and use of prophylactic therapy in prolonging life expectancy and enabling persons with hemophilia to lead increasingly normal lives.

• Natalie Duncan, MPH
• Jim Munn, MS, BS, BSN, RN-BC
• Susan Zappa, RN-BC, CPN

June 1, 2020

5:00 PM Eastern, June 1, 2022

The estimated time to complete this activity is 30 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 70% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is provided for 0.5 contact hours under ANCC criteria.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

20CE070 - Improving Access to Care Through Outreach

The purpose of this online learning activity is to enable the learner to develop competency in providing care through outreach and planning an outreach clinic.

• Discuss the impact of potential barriers to care and how to overcome these challenges including access to care in vulnerable populations
• Describe outreach as it relates to health care delivery and how various roles within a health care team are involved in the coordination process
• Differentiate three telemedicine delivery methods
• Discuss considerations involved in planning and financing an outreach clinic and potential cost-effectiveness of outreach

This module targets staff employed within the U.S. Hemophilia Treatment Center Network (USHTCN) to include nurses, nurse practitioners, social workers, physicians, physical therapists, administrators, and other professionals. It is also appropriate for hospital or institutional staff responsible for planning and managing outreach programs for persons with bleeding disorders.

This online learning activity introduces outreach as a model of care, including telemedicine, and reviews logistical and cost considerations associated with planning an outreach clinic. Two detailed case studies enable the learner to apply information gained through this activity.

• Irene S. Boehlefeld, BSN, RN-BC, CPHON
• Julia J. Golden, MSN, APRN
• Penelope (Penny) A. Kumpf, BSN, RN-BC

October 30, 2020

5:00 PM Eastern October 31, 2021

The estimated time to complete this activity is 60 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 80% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is provided for 1.0 contact hour under ANCC criteria.

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This program is Approved by the National Association of Social Workers (Approval # 886604222-7940) for 1 continuing education contact hours.

The Indiana Hemophilia and Thrombosis Center is an approved provider of continuing social work education by the NASW CE Approval Program (Provider #886604222).

Contact Information

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

System Requirements

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.

21HT00077 - Nutritional Considerations in Common Comorbidities of Hemophilia

May 21, 2021

5:00 PM Eastern, May 22, 2023
The estimated time to complete this activity is 45 minutes.

This online learning activity aims to enable learners to develop competencies regarding the roles and responsibilities of the Registered Dietitian Nutritionist as a member of the multidisciplinary comprehensive care team and to gain knowledge of nutritional considerations in common comorbidities of hemophilia, to include hepatitis C, HIV, iron deficiency anemia, osteoporosis, obesity, and dyslipidemia.

This learning activity introduces the RDN as a member of the extended hemophilia comprehensive care team at U.S. Hemophilia Treatment Centers (HTCs). Topics include discussion of the roles and responsibilities of the RDN or other qualified individual, components of the nutrition assessment administered by this professional, nutrition objectives and dietary interventions for common comorbidities of hemophilia, and important considerations and discussion points on use of dietary supplements among persons with hemophilia.

This online learning activity is intended for registered dietitian nutritionists, nurses, physical therapists, social workers, and other members of the multidisciplinary comprehensive care team at U.S. Hemophilia Treatment Centers, or HTCs, who are involved in or support the nutritional health of patients with hemophilia.

At the conclusion of this enduring material, the participants should be better able to:

• Discuss the roles and responsibilities of the Registered Dietitian Nutritionist on the hemophilia comprehensive care team
• Examine the components of the nutrition assessment administered by the Hemophilia Treatment Center Registered Dietitian Nutritionist
• Evaluate nutrition objectives and dietary interventions for common comorbidities of hemophilia
• Identify important considerations and discussion points for persons with hemophilia regarding dietary supplements

• Tina Willis, MA, RDN

In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.

• Read the Disclosure Information found in the To Dos section.
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 70% or better
• Upon successful completion of the post-test your certificate of completion will be available to print or save

In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

The University of Nebraska Medical Center designates this activity for 0.75 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.

Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273 or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High-speed internet connection
• Internet browser (current version) – Firefox, Safari, Chrome, or Explorer
  • Cookies and JavaScript must be enabled in the browser

19CE096 - Understanding Hemophilia

"Understanding Hemophilia" is a 6-part online learning activity that aims to enable clinicians at U.S. Hemophilia Treatment Centers to gain knowledge and develop expertise on the pathogenesis, inheritance, symptoms, potential complications, and clinical management of hemophilia.

• Describe the pathogenesis and inheritance patterns concerning the different factor deficiencies in hemophilia including the symptoms and sequelae that may occur
• Discuss the target factor levels for situational bleeding episodes in conjunction with the appropriate factor replacement protocols, prophylactic treatments, and nursing considerations in administration of clotting factor concentrates
• Review the development and impact of inhibitors on persons with hemophilia, including signs and symptoms, risk factors, treatment implications, and nursing considerations
• Summarize the MASAC recommendations on the use of Emicizumab such as the indications, management approaches, and concurrent use with bypassing agents
• Articulate the role of genetic testing in the identification of potential carriers and women with hemophilia and the hemostatic management recommendations during pregnancy, labor and delivery, and the postpartum phases

This online learning activity is intended for nurses, nurse practitioners, physician assistants, and other clinical staff within the federally recognized U.S. Hemophilia Treatment Center (HTC) network who wish to develop an understanding of basic concepts of hemophilia. The activity is particularly appropriate for clinicians within their first six months of employment at an HTC.

This 6-part online learning activity introduces basic concepts of hemophilia.

Part 1: Pathogenesis & Inheritance examines the coagulation system and processes, the deficit in hemophilia that interferes with clot formation, differences among types of hemophilia, and the sex-linked inheritance pattern of hemophilia.

Part 2: Symptoms & Sequelae distinguishes bleeding patterns and clinical presentation of hemophilia based on severity, differentiates types of bleeding episodes, and discusses physical/psychosocial sequelae of hemophilia.

Part 3: Factor Concentrates & Hemophilia Management discusses episodic and prophylactic management of hemophilia with clotting factor concentrate, different factor therapy protocols, and nursing considerations in administration of clotting factor concentrates.

Part 4: Introduction to Inhibitors explains the immune response and inhibitor development, signs/symptoms and risk factors of inhibitors, the impact of inhibitors on persons with hemophilia, inhibitor treatment strategies and challenges, and the positive health outcomes of immune tolerance induction therapy.

Part 5: Emicizumab covers the novel agent emicizumab, including its indications, mechanism of action, dosing options, lab considerations; as well as management of breakthrough bleeding, the boxed warning of emicizumab, use of emicizumab concurrently with bypassing agents, and potential considerations in the management of persons with hemophilia with or without inhibitors who utilize emicizumab.

Part 6: Carrier Considerations reviews hemophilia sex-linked genetics and introduces recommendations for the management of carriers and women with hemophilia, neonatal diagnosis and circumcision in males with hemophilia, and key considerations of postpartum management of carriers and women with hemophilia.

• Jennifer Maahs, MSN, PNP, RN-BC
• Amy Shapiro, MD

February 7, 2020

5:00 PM Eastern, February 7, 2022

The estimated time to complete this activity is 120 minutes. In order to receive contact hours, you must complete the following prior to the course expiration date:

• Read the Program Announcement Form
• Complete the learning activity
• Complete the evaluation
• Complete the post-test with a score of 80% or better.
• Upon successful completion of the post-test your certificate of completion will be available to print or save

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center’s Commission on Accreditation.

This activity is provided for 2.0 contact hours under ANCC criteria.

This activity is provided for 0.3 contact hours related to pharmacotherapeutic content.

This activity has been reviewed by the AAPA Review Panel and is compliant with AAPA CME Criteria. This activity is designated for 2 AAPA Category 1 CME credits. Approval is valid from 2/7/2021 to 2/7/2022. PAs should only claim credit commensurate with the extent of their participation. AAPA reference number: CME-201887.

If you have any questions about this activity, please contact Natalie Duncan in Indianapolis, IN, 317-871-0011 ext 273, toll-free 877-256-8837, or via email at nduncan@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.

• 2 gigabytes of RAM
• High speed internet connection
• Any one Internet browser:
  • Firefox (Most Current Version)
  • Safari (Most Current Version)
  • Google Chrome (Most Current Version)
  • MS Internet Explorer (Most Current Version)
  • Cookies and JavaScript must be enabled in all browsers.
  • All browsers must have flash plug in installed and enabled.
• Cookies and JavaScript must be enabled in all browsers.
• All browsers must have flash plug in installed and enabled.