Activity Number and Title
25HT00089 - Psychosocial Concerns and Coping Strategies for Persons and Families Living with an Inhibitor
Release Date
November 14, 2025
Expiration Date
5:00 PM Eastern, November 15, 2027
The estimated time to complete this activity is 60 minutes.
Purpose Statement
The purpose of this activity is to enable the learner to address the burden of reduced quality of life that has been documented among persons and families with hemophilia with an inhibitor. This module describes various validated quality of life instruments and patient testimonials to provide insight into differences in both the physical and mental health-related quality of life domains for persons with hemophilia with an inhibitor and their parents/caregivers versus persons with hemophilia without an inhibitor. Highlighting how living with an inhibitor compromises quality of life, the module offers strategies for effective psychosocial interventions to address these issues in persons with hemophilia with an inhibitor and their caregivers and family members. Social workers, nurses, and other healthcare professionals involved in the management of persons with hemophilia with an inhibitor will benefit by learning more about interventions to address reduced quality of life and how to implement such strategies.
Activity Description
The module reviews studies using a variety of validated quality of life instruments to provide insight into differences in both the physical and mental health domains for persons with hemophilia with an inhibitor and their parents/caregivers versus persons with hemophilia without an inhibitor. The module also discusses the differences in health-related quality of life among persons with an inhibitor based on treatment frequency, age, and adherence. It also covers the impact of inhibitors on quality of life of parents/caregivers of persons with hemophilia with an inhibitor, describes a real-time study of health-related quality of life differences on bleed vs nonbleed days, and describes the effect of prophylaxis on persons with an inhibitor. The module concludes with an overview of various strategies to psychosocial interventions in persons with an inhibitor.
Target Audience
This accredited continuing education activity is designed for psychosocial professionals, nurses, nurse practitioners, and other members of the health care team who are involved in the care of individuals with congenital hemophilia who have an inhibitor to clotting factor VIII or IX.
Educational Objectives
At the conclusion of this activity, the participants should be better able to:
- Explain the basic pathophysiology of an inhibitor in hemophilia
- Describe the psychosocial, physical, and financial impact of an inhibitor in persons with hemophilia and their families
- Recount differences in physical and mental health-related quality of life domains for persons with hemophilia with an inhibitor versus persons with hemophilia without an inhibitor.
- Identify differences in quality of life for parents/caregivers of persons with hemophilia with an inhibitor versus parents/caregivers of persons with hemophilia without an inhibitor
- Compare differences in quality of life among persons with hemophilia with an inhibitor on bleed and nonbleed days
- Describe differences in quality of life for the physical and psychosocial domains for persons with hemophilia with an inhibitor on prophylaxis versus those receiving on-demand treatment
- Discuss the roles/responsibilities of the healthcare team when utilizing psychosocial interventions and other communication techniques when caring for persons with hemophilia with an inhibitor
Faculty
- Susan Cutter, MSW, LCSW, MPA
Requirements for Successful Completion
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
- Read the Disclosure Information found in the To Dos section.
- Complete the learning activity
- Complete the evaluation
- Complete the post-test with a score of 80% or better
- Upon successful completion of the post-test your certificate of completion will be available to print or save
Accredited Continuing Education
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 1.0 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
This activity was planned by and for the healthcare team, and learners will receive 1.0 Interprofessional Continuing Education (IPCE) credit for learning and change.
As a Jointly Accredited Organization, University of Nebraska Medical Center is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. Regulatory boards are the final authority on courses accepted for continuing education credit. Social workers completing this course receive 1 clinical continuing education credits. The content level of this activity is advanced.
Financial Support
Partners Programs supported by educational grants from Cascade Hemophilia Consortium, Genentech, a member of the Roche Group, and Sanofi.
Contact Information
System Requirements
- 2 gigabytes of RAM
- High-speed internet connection
- Internet browser (current version) Firefox, Safari, Chrome, or Edge
- Cookies and JavaScript must be enabled in the browser
