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Partners & Collaborators - Partners in Bleeding Disorders Education

Indiana Hemophilia & Thrombosis Center

The Indiana Hemophilia & Thrombosis Center (www.IHTC.org) was established in 1998 by Amy D. Shapiro, M.D., the center's co-medical director and pediatric hematologist, and Anne Greist, M.D., the center's co-medical director and adult hematologist. The IHTC is the only federally recognized comprehensive hemophilia treatment center in Indiana and one of the largest centers in the nation, as well as the first HTC to receive national quality certification by the Accreditation Association for Ambulatory Health Care (AAAHC). The IHTC is a 501(c)3 nonprofit entity that is dedicated to providing the best, most comprehensive care to people in Indiana with bleeding or clotting disorders and to their families. The IHTC is both nationally and internationally distinguished as a Center of Excellence for its leadership in bleeding disorder patient care, education and research.

National Hemophilia Foundation

The National Hemophilia Foundation (www.Hemophilia.org) is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).

The American Thrombosis and Hemostasis Network

The American Thrombosis and Hemostasis Network (www.ATHN.org) is a non-profit organization committed to advancing and improving care for individuals affected by bleeding and thrombotic disorders. ATHN’s mission is to provide stewardship of a secure national database, adherent to all privacy guidelines, which will be used to support clinical outcomes analysis, research, advocacy and public health reporting in the hemostasis and thrombosis community. ATHN’s goal is to become the leading source for hemostasis and thrombosis data and analytics to support quality care, research, advocacy, and clinical outcomes.

The American Society of Pediatric Hematology/Oncology (ASPHO)

ASPHO (www.aspho.org) is a multidisciplinary organization dedicated to promoting the optimal care of children and adolescents with blood disorders and cancer by advancing research, education, treatment, and professional practice.

International Society of Thrombosis and Haemostasis (ISTH)

The International Society on Thrombosis and Haemostasis (www.isth.org) is a global not-for-profit membership organization advancing the understanding, prevention, diagnosis and treatment of thrombotic and bleeding disorders. The Society is dedicated to transformative scientific discoveries and clinical practices, the development of young professionals and the education of physicians, scientists and allied health professionals wherever they may live.

University of Nebraska Medical Center

In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. The University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

The Hemophilia Foundation of Michigan

The Hemophilia Foundation of Michigan (www.HFMich.org) strives to improve the quality of life for all people affected by hemophilia, Von Willebrand disease, other coagulation disorders, and related complications, including HIV/AIDS and hepatitis. The Hemophilia Foundation of Michigan offers numerous programs to support people living with bleeding and clotting disorders.

Hemostasis and Thrombosis Research Society

Hemostasis and Thrombosis Research Society (www.htrs.org) is a North American professional medical society dedicated to advancing care for people with bleeding and thrombotic disorders through investigator-initiated research, mentoring, and continuing medical education.

Clot Connect

Clot Connect (www.clotconnect.org) is an information resource from the University of North Carolina at Chapel Hill Hemophilia and Thrombosis Center. Clot Connect was created in 2010 to make available to patients who have had a blood clot solid, useful and practical information. Blood clot survivors face many unique challenges including risks associated with anticoagulant use (blood thinners), the development of post-thrombotic disorders and increased risks for future clots. Patients and their families need information and support to manage the effects of a blood clot and to prevent future clots. It was also recognized that health care professionals need easier access to the latest treatment options and scientific research related to the diagnosis, care and management of patients with blood clots and clotting disorders.

Foundation for Women and Girls with Blood Disorders

The Foundation for Women and Girls with Blood Disorders (www.fwgbd.org) is dedicated to achieving correct diagnosis and treatment of blood disorders and accompanying reproductive problems in women and girls with von Willebrand Disease (VWD), other factor deficiencies, thrombophilias, sickle cell disease (SCD), hemoglobinopathies, immune thrombocytopenic purpura (ITP) and anemias. FWGBD is an innovative organization that will build the education resource base in these important areas.

The Hemophilia Alliance

The The Hemophilia Alliance is a not-for-profit organization that comprises hemophilia treatment centers (HTCs) that either have, or are seeking to have, factor delivery programs under Section 340B of the Public Health Service Act. The purpose of the Alliance is to promote the common interests of these HTCs. The Alliance began in December 2004, and was incorporated as a 501(c)(3) organization in March 2005.

The Blood CME CenterTM is a web-based educational platform which provides a range of educational activities, resources, and links to programs providing the latest information on diseases and conditions affecting or relating to perioperative hemostasis, hematologic malignancies, and bleeding disorders such as hemophilia and von Willebrand disease.

Mission: The Blood CME CenterTM web site has been designed to help clinicians provide improved comprehensive care and outcomes in patients with bleeding and clotting disorders. The CME/CE activities provide access to new knowledge and expert opinion on a broad range of clinical issues and challenges, which frequently present in your practice, as well as timely tips and helpful resources to augment the care you provide. Want to discuss a potential educational topic? E-mail cme@bloodcmecenter.org.