The Indiana Hemophilia & Thrombosis Center (www.IHTC.org) was established in 1998 by Amy D. Shapiro, M.D., the center's co-medical director and pediatric hematologist, and Anne Greist, M.D., the center's co-medical director and adult hematologist. The IHTC is the only federally recognized comprehensive hemophilia treatment center in Indiana and one of the largest centers in the nation, as well as the first HTC to receive national quality certification by the Accreditation Association for Ambulatory Health Care (AAAHC). The IHTC is a 501(c)3 nonprofit entity that is dedicated to providing the best, most comprehensive care to people in Indiana with bleeding or clotting disorders and to their families. The IHTC is both nationally and internationally distinguished as a Center of Excellence for its leadership in bleeding disorder patient care, education and research.
The National Bleeding Disorders Foundation (NBDF) (www.Hemophilia.org) is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).
The American Thrombosis and Hemostasis Network (www.ATHN.org) is a non-profit organization committed to advancing and improving care for individuals affected by bleeding and thrombotic disorders. ATHN’s mission is to provide stewardship of a secure national database, adherent to all privacy guidelines, which will be used to support clinical outcomes analysis, research, advocacy and public health reporting in the hemostasis and thrombosis community. ATHN’s goal is to become the leading source for hemostasis and thrombosis data and analytics to support quality care, research, advocacy, and clinical outcomes.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. The University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
The Hemophilia Foundation of Michigan (www.HFMich.org) strives to improve the quality of life for all people affected by hemophilia, Von Willebrand disease, other coagulation disorders, and related complications, including HIV/AIDS and hepatitis. The Hemophilia Foundation of Michigan offers numerous programs to support people living with bleeding and clotting disorders.
The The Hemophilia Alliance is a not-for-profit organization that comprises hemophilia treatment centers (HTCs) that either have, or are seeking to have, factor delivery programs under Section 340B of the Public Health Service Act. The purpose of the Alliance is to promote the common interests of these HTCs. The Alliance began in December 2004, and was incorporated as a 501(c)(3) organization in March 2005.