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22HT00053 A School Nurses Guide to Bleeding Disorders: Hemophilia
May 27, 2022
5:00 PM Eastern, May 27, 2024
The estimated time to complete this activity is 45 minutes.
This online learning activity aims to enable the learner to develop basic knowledge and skills regarding etiology, inheritance, severity, and treatment of hemophilia, recognition of hemophilia symptoms, and use of strategies to promote a safe and positive learning environment.
The activity is designed for school nurses, nurse practitioners, and other school personnel who require basic knowledge and skill to effectively practice and teach in schools attended by a student with hemophilia. This involves debunking common myths that persist about hemophilia and replacing those myths with factual information concerning the etiology, inheritance, severity, and treatment of hemophilia. It includes information on identifying prevalent locations and symptoms of bleeding in hemophilia. Finally, the activity reviews strategies that may be implemented in the school setting to promote a safe and positive learning environment for the student with hemophilia.
This accredited continuing education activity is designed for nurses and nurse practitioners who practice in schools attended by a student with hemophilia. It may also be helpful to teachers, physical education and sports coaches, administrators, guidance counselors, and other educators and healthcare professionals needing an introduction to school related considerations in hemophilia.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 0.75 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
22HT57252 - Gene Therapy for Providers 101
October 14, 2022
5:00 PM Eastern, October 13, 2023
The estimated time to complete this enduring material is 45 minutes.
The purpose of this activity is to enable learners to develop basic knowledge of gene therapy for hemophilia, thereby enhancing learner competence to discuss gene therapy with patients who may benefit from this emerging treatment.
This learning activity provides basic education on hemophilia gene therapy, including the aims of gene therapy; the packaging, delivery, and activity of the replacement genes; and the means by which the replacement genes lead to production and/or availability of normal clotting factor in persons with hemophilia. The module will also review information that may be particularly important when discussing hemophilia gene therapy with patients, such as knowledgeable informed consent, outcomes data, and potential risks and benefits.
This accredited continuing education activity is designed for multidisciplinary providers at hemophilia treatment centers, including nurses, physicians, pharmacists, physical therapists, social workers, and genetic counselors providing care to persons with hemophilia A and hemophilia B.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Indiana Hemophilia & Thrombosis Center. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
PHYSICIANS/PHYSICIAN ASSISTANTS
The University of Nebraska Medical Center designates this enduring material for a maximum of 0.75 AMA PRA Category 1 Credits. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
PHARMACISTS (PharmDs/RPhs)
The University of Nebraska Medical Center designates this activity for 0.75 ACPE contact hours. Pharmacists should claim only the credit commensurate with the extent of their participation in the activity. Credit will be provided to NABP CPE Monitor within 60 days after the activity completion. UAN # JA0000319-9999-22-018-H01-P
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 0.75 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
No commercial support was received for this activity.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
22HT57253 - Gene Therapy for Providers 201
October 14, 2022
5:00 PM Eastern, October 13, 2023
The estimated time to complete this activity is 60 minutes.
The purpose of this activity is to enable HTC multidisciplinary staff and institutional stakeholders to gain knowledge on the steps necessary to prepare an institution to administer AAV-mediated gene therapy for hemophilia.
This learning activity is a process-oriented intermediate course that will guide HTC staff through the steps an institution must take to prepare to administer hemophilia gene therapy upon commercial availability of these products.
This accredited continuing education activity is designed for HTC multidisciplinary staff (physicians, physician assistants, nurses, nurse practitioners, physical therapists, social workers, pharmacists, geneticists, genetic counselors, infusion room staff) and institutional stakeholders (e.g., HTC administrators and directors, clinic and pharmacy billing staff, insurance coordinators).
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Indiana Hemophilia and Thrombosis Center. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
PHYSICIANS/PHYSICIAN ASSISTANTS
The University of Nebraska Medical Center designates this enduring material for a maximum of 1 AMA PRA Category 1 Credit. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
PHARMACISTS (PharmDs/RPhs)
The University of Nebraska Medical Center designates this activity for 1 ACPE contact hours. Pharmacists should claim only the credit commensurate with the extent of their participation in the activity. Credit will be provided to NABP CPE Monitor within 60 days after the activity completion. UAN # JA0000319-9999-22-019-H01-P
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 1.0 ANCC contact hour. Nurses should only claim credit for the actual time spent participating in the activity.
No commercial support was received for this activity.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
Hemophilia in Pictures
2005
The purpose of Hemophilia in Pictures is to provide basic knowledge about hemophilia through pictures and easy-to-understand information.
This online learning module covers a range of topics, including an introduction to hemophilia, assessing and managing bleeds, treatment of bleeds, staying healthy and preventing bleeds, and venipuncture and home therapy.
Hemophilia in Pictures is for hemophilia educators and people with hemophilia alike. The information is basic and is provided through pictures and easy-to-understand language, so it is accessible to anyone.
Hemophilia in Pictures has many goals. Please refer to the HIP Educators Guide to learn more about the educational goals for Educators as well as People with Hemophilia.
Upon launching the presentation, there are three handouts available for you to print or save for future reference: Educator Guide, Educator Glossary, and On Screen Notes.
To access the handouts, click on the slide notes and resources.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
21HT50146 Hereditary Hemorrhagic Telangiectasia: Right Under Your Nose
June 1, 2022
5:00 PM Eastern, May 31, 2024
The estimated time to complete this activity is 60 minutes.
This online learning activity aims to enable the learner to gain knowledge and expertise regarding hereditary hemorrhagic telangiectasia (HHT), including inheritance and pathophysiology, screening guidelines, management, and the importance of the multidisciplinary approach in caring for these patients.
This online learning activity provides a detailed introduction to hereditary hemorrhagic telangiectasia (HHT) appropriate for an audience of multidisciplinary health care providers involved in the team-based care of patients with HHT. This overview includes information on the genetic inheritance and pathophysiology of HHT as well as the widely-used Curaçao diagnostic criteria to determine if a person has HHT, consensus screening guidelines for HHT management, and an explanation of the importance of a multidisciplinary approach to care of patients with HHT. This activity incorporates case scenarios and interactive questions to encourage active learning through application of the content.
This accredited continuing education activity is designed for physicians, physician assistants, nurse practitioners, nurses, and other multidisciplinary team members who care for patients with hereditary hemorrhagic telangiectasia.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Indiana Hemophilia & Thrombosis Center. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
PHYSICIANS/PHYSICIAN ASSISTANTS
The University of Nebraska Medical Center designates this enduring material for a maximum of 1.0 AMA PRA Category 1 Credits. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 1.0 ANCC contact hours. This activity is provided for 0.15 contact hours related to pharmacotherapeutic content. Nurses should only claim credit for the actual time spent participating in the activity.
No commercial support was received for this activity.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
How Does Blood Clot?
The purpose of this activity is to enable the learner to improve understanding of and increase interest in the basic concepts involved in the complex coagulation process to ultimately improve patient care.
Nurses and other healthcare staff employed within or affiliated with the U.S. Hemophilia Treatment Center (HTC) network.
An animated module illustrating the coagulation cascade.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813, toll-free 877-256-8837, or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
20CE169 - Physical Therapy and Comprehensive Care
June 15, 2021
5:00 PM Eastern, June 16, 2023
The estimated time to complete this activity is 45 minutes.
The purpose of this module is to enable the learner to gain knowledge of the physical therapists role in providing comprehensive care at U.S. hemophilia treatment centers (HTCs), as well as the resources and opportunities available to physical therapists in the U.S. HTC network.
The activity begins with a brief description of the U.S. hemophilia treatment center (HTC) network and the comprehensive care model utilized at these centers. It then introduces the Physical Therapy Working Group (PTWG) of the National Hemophilia Foundation and resources available from this group, including recommendations on physical therapy evaluation elements as well as physical therapy treatment guidelines for bleeding disorder management. The activity also explains the physical therapists contribution to comprehensive care, including his or her role in helping patients select appropriate sports, physical activity, and employment.
This enduring material is intended for physical therapists, physical therapist assistants, nurses, nurse practitioners, and other health care providers who are involved with the federally recognized U.S. Hemophilia Treatment Center, or HTC, network or otherwise engaged in comprehensive care and/or physical therapy management of individuals with hemophilia and other bleeding disorders.
This activity assumes that the learner possesses fundamental knowledge of the musculoskeletal and neurological systems and a basic understanding of bleeding disorders and the comprehensive care model. Learners who do not meet these criteria may wish to complete the PartnersPRN activity, Understanding Hemophilia, prior to completion of this module on physical therapy and comprehensive care.
At the conclusion of this enduring material, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Indiana Hemophilia & Thrombosis Center on behalf of the Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
The University of Nebraska Medical Center designates this activity for 0.75 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
This activity (CPTA #22-303) has been approved by the California Physical Therapy Association (CPTA) for 0.075 CEUs. While many states recognize continuing education credits from CPTA, please verify with your state Board that these credits are acceptable in your state. To learn more about CPTA, visit https://www.ccapta.org.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
20CE168 - Physical Therapy in the Care of Persons with Bleeding Disorders
June 15, 2021
5:00 PM Eastern, June 16, 2023
The estimated time to complete this activity is 90 minutes.
The purpose of this online learning module is to enable the learner to increase their knowledge on the musculoskeletal concerns, potential complications, and physical therapy management of bleeding disorders.
After providing a review of basic information about hemophilia and von Willebrand disease, this learning module describes signs and symptoms of hemophilic bleeding, the complications associated with recurrent bleeding, physical therapy interventions for acute and chronic musculoskeletal complications of hemophilia, and imaging techniques including X-ray, MRI, and musculoskeletal ultrasound, which may be used to assess musculoskeletal status in patients with bleeding disorders.
This enduring material is intended for physical therapists, physical therapist assistants, nurses, nurse practitioners, and other health care providers who are involved with the federally recognized U.S. Hemophilia Treatment Center, or HTC, network or otherwise engaged in comprehensive care and/or physical therapy management of individuals with hemophilia and other bleeding disorders.
This activity assumes that the learner possesses fundamental knowledge of the musculoskeletal and neurological systems and a basic understanding of bleeding disorders and the comprehensive care model. Learners who do not meet these criteria may wish to complete the PartnersPRN activity, "Understanding Hemophilia", prior to completion of this module on physical therapy and comprehensive care.
At the conclusion of this enduring material, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Indiana Hemophilia & Thrombosis Center on behalf of the Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
The University of Nebraska Medical Center designates this activity for 1.5 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
This activity (CPTA #22-302) has been approved by the California Physical Therapy Association (CPTA) for 0.15 CEUs. While many states recognize continuing education credits from CPTA, please verify with your state Board that these credits are acceptable in your state. To learn more about CPTA, visit https://www.ccapta.org.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
The Role of the Nurse in Hemophilia Care
The purpose of this module is to familiarize the learner with the critical role nurses play worldwide in the multidisciplinary care team.
While there are some responsibilities that are universal for all nurses, there is also a great deal of variation in the role and responsibilities of nurses in hemophilia care. This learning module describes those roles and responsibilities and some of the variation that may occur throughout the world.
June 18, 2013
This module was created to describe the worldwide variation in the role and responsibilities of nurses in hemophilia care.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
Hemophilia 101 for Nonclinical Staff at HTCs (non CE)
This module is designed to provide information about the U.S. federally funded hemophilia treatment center (or HTC) network (referred to as USHTCN) and the multidisciplinary comprehensive care provided at HTCs. The module also reviews the key concepts of data collection and research at HTCs. Providing an overview of the scientific precepts of hemophilia, the module further explains how data and clinical care are integrated and pertinent to the important role of nonclinical staff at HTCs.
This module is designed for nonclinical professionals in the HTC network, including data collection personnel, administrators, HTC staff interacting with 340B programs.
This module is divided into three sections:
Section I covers the U.S. Hemophilia Treatment Center Network (USHTCN) and the multidisciplinary comprehensive care model practiced at HTCs,
Section II reviews the data collection and research at HTCs, and
Section III discusses the clinical and medical issues in hemophilia at a 101 level and the importance of these issues to nonclinical staff.
January 30, 2015
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813, toll-free 877-256-8837, or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
21HT50199 - MASAC Pain Initiative Task Force Pain Management Guidelines for Bleeding Disorders
January 10, 2022
5:00 PM Eastern, December 15, 2023
The estimated time to complete this activity is 120 minutes.
The content level of this activity is intermediate.
The purpose of this enduring material is to enable the learner to gain knowledge on the opioid guidance document published in early 2020 by the Medical and Scientific Advisory Council (or MASAC).
In this module, there are several aspects of pain management that will be addressed. Foremost is to familiarize you with the MASAC opioid guidance document established in 2020. In addition, we will describe the importance of standardized assessment of pain. This activity will help you to determine goals for pain management and how the roles of each team member can help incorporate non-pharmacological pain management options. Lastly, opioid issues including when and how to start opioids for pain management and monitoring systems that will assist you will be covered in the modules. To enhance the learning, case studies will be examined.
This enduring material is intended for physicians, physician assistants, nurse practitioners, nurses, social workers, physical therapists, and other interested members of the bleeding disorder comprehensive care team.
At the conclusion of this enduring material, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Indiana Hemophilia & Thrombosis Center. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
PHYSICIANS/PHYSICIAN ASSISTANTS
The University of Nebraska Medical Center designates this enduring material for a maximum of 2.0 AMA PRA Category 1 Credits. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 2.0 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
As a Jointly Accredited Organization, University of Nebraska Medical Center is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. State and provincial regulatory boards have the final authority to determine whether an individual course may be accepted for continuing education credit. University of Nebraska Medical Center maintains responsibility for this course. Social workers completing this course receive 2 continuing education credits.
PHYSICAL THERAPISTS
This activity is approved for physical therapy continuing education units (CEUs) through the California Physical Therapy Association (CPTA) (Approved for 0.2 CEUs by CPTA #22-584). While many states recognize continuing education credits from CPTA, please verify with your state Board that these credits are acceptable in your state. To learn more about CPTA, visit https://www.ccapta.org.
No commercial support was received for this activity. Supported by an educational grant from the National Hemophilia Foundation.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
22HT00046 Understanding Hemophilia
February 24, 2022
5:00 PM Eastern, February 23, 2024
The estimated time to complete this activity is 120 minutes.
"Understanding Hemophilia" is a 6-part online learning activity that aims to enable clinicians at U.S. Hemophilia Treatment Centers to gain knowledge and develop expertise on the pathogenesis, inheritance, symptoms, potential complications, and clinical management of hemophilia.
This 6-part online learning activity introduces basic concepts of hemophilia.
Part 1: Pathogenesis & Inheritance examines the coagulation system and processes, the deficit in hemophilia that interferes with clot formation, differences among types of hemophilia, and the sex-linked inheritance pattern of hemophilia.
Part 2: Symptoms & Sequelae distinguishes bleeding patterns and clinical presentation of hemophilia based on severity, differentiates types of bleeding episodes, and discusses physical/psychosocial sequelae of hemophilia.
Part 3: Factor Concentrates & Hemophilia Management discusses episodic and prophylactic management of hemophilia with clotting factor concentrate, different factor therapy protocols, and nursing considerations in administration of clotting factor concentrates.
Part 4: Introduction to Inhibitors explains the immune response and inhibitor development, signs/symptoms and risk factors of inhibitors, the impact of inhibitors on persons with hemophilia, inhibitor treatment strategies and challenges, and the positive health outcomes of immune tolerance induction therapy.
Part 5: Emicizumab covers the novel agent emicizumab, including its indications, mechanism of action, dosing options, lab considerations; as well as management of breakthrough bleeding, the boxed warning of emicizumab, use of emicizumab concurrently with bypassing agents, and potential considerations in the management of persons with hemophilia with or without inhibitors who utilize emicizumab.
Part 6: Carrier Considerations reviews hemophilia sex-linked genetics and introduces recommendations for the management of carriers and women with hemophilia, neonatal diagnosis and circumcision in males with hemophilia, and key considerations of postpartum management of carriers and women with hemophilia.
This enduring material is intended for nurses, nurse practitioners, physician assistants, and other clinical staff within the federally recognized U.S. Hemophilia Treatment Center (HTC) network who wish to develop an understanding of basic concepts of hemophilia. The activity is particularly appropriate for clinicians within their first six months of employment at an HTC.
At the conclusion of this enduring material, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 2.0 ANCC contact hour(s). This activity is provided for 0.3 contact hours related to pharmacotherapeutic content. Nurses should only claim credit for the actual time spent participating in the activity.
PHYSICIAN ASSISTANTS
University of Nebraska Medical Center has been authorized by the American Academy of PAs (AAPA) to award AAPA Category 1 CME credit for activities planned in accordance with AAPA CME Criteria. This activity is designated for 2 AAPA Category 1 CME credits. Approval is valid until February 23, 2024. PAs should only claim credit commensurate with the extent of their participation.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
21HT00091 - A School Nurse's Guide to Sickle Cell Disease
August 18, 2021
5:00 PM Eastern, August 18, 2023
The estimated time to complete this activity is 30 minutes.
The purpose of this activity is to enable the learner to gain knowledge on the etiology, symptoms, treatment of sickle cell disease, and management strategies in order to optimize safety and learning for affected students.
This module will present the causes, disease traits, inheritance, and symptoms of sickle cell disease (SCD). In addition, common problems and complications of SCD including pain, stroke, priapism, acute chest syndrome, infection, bone disease, eye disease, and other health problems will be provided. Strategies and special accommodations that can be used in the school setting will also be presented.
This enduring material is intended for professional school nurses in schools attended by a child with sickle cell disease (SCD), teachers, physical education teachers, administrators and guidance counselors, and other school staff or health care professionals who require an introduction to school-related considerations for students with SCD.
At the conclusion of this enduring material, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Indiana Hemophilia and Thrombosis Center. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
The University of Nebraska Medical Center designates this activity for 0.5 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
No commercial support was received for this activity.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
Gene Therapy 101 for Patients and Families
April 25, 2022
N/A
Although the volume of health care content on the internet has increased over the past several years, patients with hemophilia often experience difficulty with information on new treatments. This being the case, these patients will ask for guidance from their healthcare providers.
Authors Dr. Len Valentino and Jim Munn have arranged this module as a journey through the process of informed consent for patients who are considering receiving gene therapy for hemophilia. This includes:
Supported by an educational grant from BioMarin Pharmaceutical Inc., in collaboration with the American Thrombosis and Hemostasis Network, Inc. and the National Hemophilia Foundation.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
The Partners in Bleeding Disorders Education Program is supported by educational grants from Takeda Pharmaceuticals U.S.A., Inc; Genentech, a member of the Roche Group; the National Hemophilia Foundation (NHF); and the Hemophilia Alliance.
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