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24HT00086 Understanding Hemophilia
July 15, 2024
5:00 PM Eastern, July 15, 2026
The estimated time to complete this activity is 120 minutes.
"Understanding Hemophilia" is a 6-part online learning activity that aims to enable clinicians at U.S. Hemophilia Treatment Centers to gain knowledge and develop expertise on the pathogenesis, inheritance, symptoms, potential complications, and clinical management of hemophilia.
This 6-part online learning activity introduces basic concepts of hemophilia.
Part 1: Pathogenesis & Inheritance examines the coagulation system and processes, the deficit in hemophilia that interferes with clot formation, differences among types of hemophilia, and the sex-linked inheritance pattern of hemophilia.
Part 2: Symptoms & Sequelae distinguishes bleeding patterns and clinical presentation of hemophilia based on severity, differentiates types of bleeding episodes, and discusses physical/psychosocial sequelae of hemophilia.
Part 3: Factor Concentrates & Hemophilia Management discusses episodic and prophylactic management of hemophilia with clotting factor concentrate, different factor therapy protocols, and nursing considerations in administration of clotting factor concentrates.
Part 4: Introduction to Inhibitors explains the immune response and inhibitor development, signs/symptoms and risk factors of inhibitors, the impact of inhibitors on persons with hemophilia, inhibitor treatment strategies and challenges, and the positive health outcomes of immune tolerance induction therapy.
Part 5: Non-Factor Therapies covers gene therapy for hemophilia and the novel agent emicizumab. Gene therapy includes goals of therapy, delivery of gene therapy, eligibility criteria, patient readiness considerations pre- and post-therapy, and long-term follow-up post-therapy.
Part 6: Carrier Considerations reviews hemophilia sex-linked genetics and introduces recommendations for the management of carriers and women with hemophilia, neonatal diagnosis and circumcision in males with hemophilia, and key considerations of postpartum management of carriers and women with hemophilia.
This accredited continuing education activity is designed for physical therapists, nurses, nurse practitioners, social workers and other clinical and non-clinical staff at federally recognized U.S. Hemophilia Treatment Centers who wish to develop an understanding of basic concepts of hemophilia. This activity is particularly appropriate for clinicians within their first six months of employment at an HTC.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 2.0 ANCC contact hour(s). This activity is provided for 0.3 contact hours related to pharmacotherapeutic content. Nurses should only claim credit for the actual time spent participating in the activity.
SOCIAL WORKERS
As a Jointly Accredited Organization, University of Nebraska Medical Center is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. Regulatory boards are the final authority on courses accepted for continuing education credit. Social workers completing this course receive 2 clinical continuing education credits. The content level of this activity is beginner.
PHYSICAL THERAPISTS
This activity is approved for physical therapy continuing education units (CEUs) through the California Physical Therapy Association (CPTA) (Approved for 0.2 CEUs by CPTA #24-215) from May 24, 2024 to May 24, 2025. While many states recognize continuing education credits from CPTA, please verify with your state Board that these credits are acceptable in your state. To learn more about CPTA, visit https://www.ccapta.org.
Partners in Bleeding Disorders Education Programs are currently supported by educational grants from Genentech, a member of the Roche Group; Takeda Pharmaceuticals U.S.A., Inc.; and Novo Nordisk.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
24HT00085 - Multidisciplinary Bleeding Disorders Comprehensive Care Team: Roles and Responsibilities
April 18, 2024
5:00 PM Eastern, April 17, 2026
The estimated time to complete this enduring material is 45 minutes.
At U.S. Hemophilia Treatment Centers, care is delivered by a multidisciplinary team of health care specialists with expertise in prevention and management of complications of bleeding disorders. Best practice guidelines exist on the ideal composition of this team and expected contributions of each team member. This PartnersPRN online learning activity aims to enable the learner to develop competencies regarding the roles and responsibilities of members of the multidisciplinary bleeding disorders comprehensive care team.
This online learning activity includes content about the roles and responsibilities of members of the core and extended multidisciplinary bleeding disorders comprehensive care teams at federally recognized Hemophilia Treatment Centers (HTCs). These roles and responsibilities are derived from best practice guidelines issued by the Medical and Scientific Advisory Council (MASAC) of the National Bleeding Disorders Foundation (NBDF). Based on these guidelines, the activity identifies core team members as the hematologist, nurse, physical therapist, social worker, as well as a program coordinator, administrative staff, and round-the-clock access to laboratory specialists in a specialized coagulation laboratory. Extended team members include any number of specialists either on HTC staff or by referral to community providers, including dental/oral health professionals, genetic counselors, pharmacists, insurance specialists/financial managers, hepatologists/infection disease specialists, registered dietitians/nutritionists, orthopedists, obstetricians/gynecologists, data managers, and clinical research coordinators.
This accredited continuing education activity is designed for nurses, nurse practitioners, physical therapists, social workers, and other clinical and non-clinical staff at federally recognized U.S. Hemophilia Treatment Centers who require knowledge about the roles and responsibilities of members of the multidisciplinary comprehensive care team.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credit, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 0.75 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, at 463-238-1186 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
Special Note
Before completing this module, you may want to complete the PartnersPRN online learning activity titled U.S. Hemophilia Treatment Center Network: The Big Picture or if its no longer available on the site, contact Partners partners@ihtc.org for a copy of the PDF slides.
24HT00069 The 340B Pharmacy Program and the HTC
January 10, 2024
5:00 PM Eastern, January 9, 2026
The estimated time to complete this enduring material is 30 minutes.
The purpose of this module is to examine the 340B Pharmacy Program, its role in homecare of hemophilia, eligibility and enrollment, restrictions and requirements, and special considerations for operation of such a program.
As designated in The Veterans Health Care Act of 1992 designated federally-recognized and federally-funded Hemophilia Diagnostic and Treatment Centers (HTCs) as covered entities eligible to participate in the 340B Drug Pricing Program. HTCs were henceforth able to utilize the 340B Program to stretch federal grant funding and develop capacity to provide robust, comprehensive services to all patients served. In 2015 federal grants divided among 140+ HTCs in the U.S. totaled only $4.9 million from Health Resources and Services Administration (HRSA) (to be used for services not covered by insurance) and an additional $5 million from the Centers for Disease Control and Prevention (CDC) (earmarked for surveillance and research).1 Thus, in this era of fiscal constraint brought on by budget cuts and the effects of federal sequestration, HTC participation in the 340B Pharmacy Program has provided a critical means of financial support for HTC services enabling provision of comprehensive care for all patients seen at HTCs with these programs. Approximately 100 of the 140 HTCs participate in the 340B Pharmacy Program.2 As a condition of participation, these centers must invest all revenues from the program back into patient services, care coordination, research and other programs that directly benefit patients.
This module will provide a brief history of?the 340B Pharmacy Program established in 1992 under the Veterans Healthcare Act and the role of these programs in lowering costs of care and providing revenue for the HTC which must be reinvested into programs and services provided directly to HTC patients. For those HTCs in consideration of starting a 340B Pharmacy Program, this module also introduces the Office of Pharmacy Affairs requirements and regulations for such a program, including definitions of key terms and information about the application process, program maintenance, and potential program audits. Finally, this module will recommend the Hemophilia Alliance as a resource for HTCs with 340B Pharmacy Programs as well as those who are interested in learning more about the operation and management of such programs at HTCs.?
This accredited continuing education activity is designed for nurses, pharmacists, pharmacy technicians, and other healthcare professionals in the U.S. Hemophilia Treatment Center (HTC) Network who wish to learn more about establishing and/or managing a 340B Pharmacy Program and the role of these programs in the U.S. HTC Network.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credit, you must complete these steps prior to the activity expiration date.
In order for pharmacists/pharmacy technicians to claim credit for their participation in the activity, completion of the activity evaluation survey with inclusion of birth date (mm/dd) and NABP e-Profile ID # is required. UNMC will ensure that the data is provided to CPE Monitor.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
PHARMACISTS (PharmDs/RPhs) AND PHARMACY TECHNICIANS
The University of Nebraska Medical Center designates this activity for 0.5 ACPE contact hours. Pharmacists/Pharmacy Technicians should claim only the credit commensurate with the extent of their participation in the activity.?UAN # JA0000319-9999-24-004-H03-P / UAN # JA0000319-9999-24-004-H03-T
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 0.5 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 463-238-1186 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
The Partners in Bleeding Disorders Education Program is supported by an independent medical education grant(s). Travel and lodging for program participants are made possible by an at-will contribution from the Indiana Hemophilia & Thrombosis Center.
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