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23HT58930-31 Plasminogen Deficiency: An Ultra-rare, Multi-system Disease (for HTC staff)
July 21, 2023
5:00 PM Eastern, July 21, 2025
The estimated time to complete this activity is 60 minutes.
The purpose of this enduring material is to enable learners to gain knowledge of the diagnosis and management for plasminogen deficiency, and the treatment and support services available through the US HTC network.
This learning activity presents diagnostic and management considerations for plasminogen deficiency. Additionally, information is offered regarding the first FDA-approved treatment and the importance of the HTC as medical home for patients diagnosed with plasminogen deficiency.
This accredited continuing education activity is designed for multidisciplinary providers at Hemophilia Treatment Centers (HTCs) including physicians, advanced care providers, nurses, pharmacists, and other members of the multidisciplinary care team who might treat a patient presenting with plasminogen deficiency.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Indiana Hemophilia & Thrombosis Center. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
PHYSICIANS/PHYSICIAN ASSISTANTS
The University of Nebraska Medical Center designates this enduring material for a maximum of 1.0 AMA PRA Category 1 Credits. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 1.0 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
No commercial support was received for this activity.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
24HT00096 A School Nurses Guide to Bleeding Disorders: Hemophilia
June 7, 2024
5:00 PM Eastern, June 8, 2026
The estimated time to complete this activity is 45 minutes.
This activity aims to enable the learner to enhance his/her knowledge about hemophilia, common treatment methods/products, and accommodations recommended to provide a safe and positive learning environment for the student with hemophilia.
A School Nurses Guide to Bleeding Disorders: Hemophilia contains information about hemophilia, its treatment, and accommodations that must be made in order to promote a safe and positive learning environment for the student with hemophilia. This includes a definition of hemophilia and a description of common symptoms; description of hemophilia treatment; and exploration of the Hemophilia Treatment Center (HTC) comprehensive care team as an essential resource in managing the student with hemophilia.
This accredited continuing education activity is designed for professional school nurses in schools attended by a child with hemophilia; teachers, physical education instructors, school administrators, and guidance counselors; other educators and healthcare professionals who require an introduction to school-related considerations for students with hemophilia.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 0.75 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
The Partners in Bleeding Disorders Education Program is supported by educational grants from Genentech, a member of the Roche Group; Takeda Pharmaceuticals U.S.A., Inc.; and Novo Nordisk.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
23HT00148 A School Nurses Guide to Bleeding Disorders: von Willebrand Disease
December 27, 2023
5:00 PM Eastern, December 29, 2025
The estimated time to complete this enduring material is 30 minutes.
This activity aims to enable the learner to enhance his/her knowledge about von Willebrand disease (VWD), common treatment methods/products, and accommodations recommended to provide a safe and positive learning environment for the student with VWD.
A School Nurses Guide to Bleeding Disorders: von Willebrand Disease contains information about von Willebrand disease (VWD), its treatment, and accommodations that must be made in order to promote a safe and positive learning environment for the student with VWD. This includes a definition of VWD and a description of common symptoms; description of VWD treatment; and exploration of the Hemophilia Treatment Center (HTC) comprehensive care team as an essential resource in managing the student with VWD.
This accredited education activity is designed for professional school nurses in schools. Other care team members may find this education helpful including teachers, PE teachers, school administrators, and guidance counselors, other educators, and other health care professionals.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credit, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 0.5 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 463-238-1186 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
An Overview of the Background, Inheritance and Pathophysiology of von Willebrand Disease
October 24, 2022
The estimated time to complete this activity is 45 minutes.
The purpose of this online learning activity is to enable the learner to develop an understanding of von Willebrand disease (VWD) by examining the discovery and evolution of scientific knowledge about VWD; genetic inheritance of the bleeding disorder; production, structure, and functions of von Willebrand factor (VWF); and characteristics of the different types of VWD.
This enduring material is intended for nurses and other healthcare professionals employed within the federally recognized U.S. hemophilia treatment center network (USHTCN) seeking training on von Willebrand disease (VWD) relating to the history and evolution of our understanding of the condition, the role of von Willebrand factor (VWF), and the differentiation of the multiple classifications of VWD.
This online learning activity provides an outline of the history, inheritance, and pathophysiology of von Willebrand Disease (VWD). It includes a description of how VWD was discovered and traces the evolution of knowledge about the bleeding disorder. It also details the genetic inheritance of VWD and the likelihood that offspring of an affected parent will be born with VWD. The activity examines the production and many functions of von Willebrand factor, described as the Jedi knight of the bloodstream. Finally, the activity differentiates the types of VWD on the basis of laboratory features. VWF function, VWF multimer quantity and quality, and symptoms.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813, toll-free 877-256-8837, or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
Gene Therapy for Providers 101
July 01, 2022
The estimated time to complete this activity is 45 minutes.
The purpose of this activity is to enable learners to develop basic knowledge of gene therapy for hemophilia, thereby enhancing learner competence to discuss gene therapy with patients who may benefit from this emerging treatment.
This learning activity provides basic education on hemophilia gene therapy, including the aims of gene therapy; the packaging, delivery, and activity of the replacement genes; and the means by which the replacement genes lead to production and/or availability of normal clotting factor in persons with hemophilia. The module will also review information that may be particularly important when discussing hemophilia gene therapy with patients, such as knowledgeable informed consent, outcomes data, and potential risks and benefits.
This enduring material is intended for multidisciplinary providers at hemophilia treatment centers, including nurses, physicians, pharmacists, physical therapists, social workers, and genetic counselors providing care to persons with hemophilia A and hemophilia B.
At the conclusion of this enduring material, the participants should be better able to:
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
Gene Therapy for Providers 201
July 01, 2022
The estimated time to complete this activity is 60 minutes.
The purpose of this activity is to enable HTC multidisciplinary staff and institutional stakeholders to gain knowledge on the steps necessary to prepare an institution to administer AAV-mediated gene therapy for hemophilia.
This learning activity is a process-oriented intermediate course that will guide HTC staff through the steps an institution must take to prepare to administer hemophilia gene therapy upon commercial availability of these products.
This enduring material is intended for HTC multidisciplinary staff (physicians, physician assistants, nurses, nurse practitioners, physical therapists, social workers, pharmacists, geneticists, genetic counselors, infusion room staff) and institutional stakeholders (e.g., HTC administrators and directors, clinic and pharmacy billing staff, insurance coordinators).
At the conclusion of this enduring material, the participants should be better able to:
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
Gene Therapy for Providers 301
July 01, 2022
The estimated time to complete this activity is 60 minutes.
The purpose of this activity is to enable HTC multidisciplinary staff and hospital staff to support patients and their families as they consider hemophilia gene therapy, including education of patients and families on basic concepts in hemophilia gene therapy; administrative preparedness for providers; and short- and long-term care demands.
This learning activity is a process-oriented intermediate course that will guide HTC staff through the steps an institution must take to prepare to administer hemophilia gene therapy upon commercial availability of these products.
This enduring material is intended for physicians, physician assistants, nurses, nurse practitioners, physical therapists, social workers, pharmacists, and infusion room staff.
At the conclusion of this enduring material, the participants should be better able to:
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
Hemophilia in Pictures
2005
The purpose of Hemophilia in Pictures is to provide basic knowledge about hemophilia through pictures and easy-to-understand information.
This online learning module covers a range of topics, including an introduction to hemophilia, assessing and managing bleeds, treatment of bleeds, staying healthy and preventing bleeds, and venipuncture and home therapy.
Hemophilia in Pictures is for hemophilia educators and people with hemophilia alike. The information is basic and is provided through pictures and easy-to-understand language, so it is accessible to anyone.
Hemophilia in Pictures has many goals. Please refer to the HIP Educators Guide to learn more about the educational goals for Educators as well as People with Hemophilia.
Upon launching the presentation, there are three handouts available for you to print or save for future reference: Educator Guide, Educator Glossary, and On Screen Notes.
To access the handouts, click on the slide notes and resources.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
24HT62125 Hereditary Hemorrhagic Telangiectasia: Right Under Your Nose
June 27, 2024
5:00 PM Eastern, June 26, 2026
The estimated time to complete this activity is 30 minutes.
This online learning activity aims to enable the learner to gain knowledge and expertise regarding hereditary hemorrhagic telangiectasia (HHT), including inheritance and pathophysiology, screening guidelines, management, and the importance of the multidisciplinary approach in caring for these patients.
This online learning activity provides a detailed introduction to hereditary hemorrhagic telangiectasia (HHT) appropriate for an audience of multidisciplinary health care providers involved in the team-based care of patients with HHT. This overview includes information on the genetic inheritance and pathophysiology of HHT as well as the widely-used Curaçao diagnostic criteria to determine if a person has HHT, consensus screening guidelines for HHT management, and an explanation of the importance of a multidisciplinary approach to care of patients with HHT. This activity incorporates case scenarios and interactive questions to encourage active learning through application of the content.
This accredited continuing education activity is designed for physicians, physician assistants, nurse practitioners, nurses, and other multidisciplinary team members who care for patients with hereditary hemorrhagic telangiectasia.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Indiana Hemophilia & Thrombosis Center. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
PHYSICIANS/PHYSICIAN ASSISTANTS
The University of Nebraska Medical Center designates this enduring material for a maximum of 0.5 AMA PRA Category 1 Credit(s). Physicians should claim only the credit commensurate with the extent of their participation in the activity.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 0.5 ANCC contact hour(s). Nurses should only claim credit for the actual time spent participating in the activity.
No commercial support was received for this activity.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
How Does Blood Clot?
The purpose of this activity is to enable the learner to improve understanding of and increase interest in the basic concepts involved in the complex coagulation process to ultimately improve patient care.
Nurses and other healthcare staff employed within or affiliated with the U.S. Hemophilia Treatment Center (HTC) network.
An animated module illustrating the coagulation cascade.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813, toll-free 877-256-8837, or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
22HT00069 Is That Ok? Ethical Dilemmas In Our Community
October 20, 2022
5:00 PM Eastern, October 21, 2024
The estimated time to complete this activity is 30 minutes.
The purpose of this online learning activity is to enable the learner to enhance competencies to recognize ethical dilemmas, identify the relevant ethical concepts and principles, and apply the ethical decision-making process to resolve these dilemmas.
This online learning activity provides healthcare professionals and others an opportunity to gain knowledge about ethical theories, key ethical concepts, and the opportunity to apply these theories and concepts through case study examples.
This accredited continuing education activity is designed for members of the hemophilia treatment center (HTC) multidisciplinary comprehensive care team including Nurses and Social Workers.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 0.5 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
23HT00125 Physical Therapy and Comprehensive Care
December 1, 2023
5:00 PM Eastern, December 1, 2025
The estimated time to complete this activity is 45 minutes.
The purpose of this online learning module is to enable the learner to gain knowledge of the physical therapists role in providing comprehensive care at U.S. hemophilia treatment centers (HTCs), as well was the resources and opportunities available to physical therapists in the U.S. HTC Network.
The activity begins with a brief description of the U.S. hemophilia treatment center (HTC) network and the comprehensive care model utilized at these centers. It then introduces the Physical Therapy Working Group (PTWG) of the National Bleeding Disorders Foundation and resources available from this group, including recommendations on physical therapy evaluation elements as well as physical therapy treatment guidelines for bleeding disorder management. The activity also explains the physical therapists contribution to comprehensive care, including his or her role in helping patients select appropriate sports, physical activity, and employment.
This accredited continuing education activity is designed for physical therapists, physical therapy assistants, nurses, nurse practitioners, and other health care providers who are involved with the federally recognized U.S. Hemophilia Treatment Center, or HTC, network or otherwise engaged in comprehensive care and/or physical therapy management of individuals with hemophilia and other bleeding disorders.
This activity assumes that the learner possesses fundamental knowledge of the musculoskeletal and neurological systems and a basic understanding of bleeding disorders and the comprehensive care model. Learners who do not meet these criteria may wish to complete the PartnersPRN activity, Understanding Hemophilia, prior to completion of this module on physical therapy and comprehensive care.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 0.75 ANCC contact hour(s). Nurses should only claim credit for the actual time spent participating in the activity.
IPCE CREDIT
This activity was planned by and for the healthcare team, and learners will receive 0.75 Interprofessional Continuing Education (IPCE) credit for learning and change.
PHYSICAL THERAPISTS
This activity is approved for physical therapy continuing education units (CEUs) through the California Physical Therapy Association (CPTA) (Approved for 0.075 CEUs by CPTA #23-569) from December 1, 2023 to December 1, 2024. While many states recognize continuing education credits from CPTA, please verify with your state Board that these credits are acceptable in your state. To learn more about CPTA, visit https://www.ccapta.org.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 463-238-1186 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
23HT00124 Physical Therapy in the Care of Persons with Bleeding Disorders
December 1, 2023
5:00 PM Eastern, December 1, 2025
The estimated time to complete this activity is 90 minutes.
The purpose of this online learning module is to enable the learner to increase their knowledge on the musculoskeletal concerns, potential complications, and physical therapy management of bleeding disorders.
After providing a review of basic information about hemophilia and von Willebrand disease, this learning module describes signs and symptoms of hemophilic bleeding, the complications associated with recurrent bleeding, physical therapy interventions for acute and chronic musculoskeletal complications of hemophilia, and imaging techniques including X-ray, MRI, and musculoskeletal ultrasound, which may be used to assess musculoskeletal status in patients with bleeding disorders.
This accredited continuing education activity is designed for physical therapists, physical therapist assistants, nurses, nurse practitioners, and other health care providers who are involved with the federally recognized U.S. Hemophilia Treatment Center, or HTC, network or otherwise engaged in comprehensive care and/or physical therapy management of individuals with hemophilia and other bleeding disorders.
This activity assumes that the learner possesses fundamental knowledge of the musculoskeletal and neurological systems and a basic understanding of bleeding disorders and the comprehensive care model. Learners who do not meet these criteria may wish to complete the PartnersPRN activity, Understanding Hemophilia, prior to completion of this module on physical therapy and comprehensive care.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 1.5 ANCC contact hour(s). Nurses should only claim credit for the actual time spent participating in the activity.
IPCE CREDIT
This activity was planned by and for the healthcare team, and learners will receive 1.5 Interprofessional Continuing Education (IPCE) credit for learning and change.
PHYSICAL THERAPISTS
This activity is approved for physical therapy continuing education units (CEUs) through the California Physical Therapy Association (CPTA) (Approved for 0.15 CEUs by CPTA #23-570) from December 1, 2023 to December 1, 2024. While many states recognize continuing education credits from CPTA, please verify with your state Board that these credits are acceptable in your state. To learn more about CPTA, visit https://www.ccapta.org.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
23HT00106 Psychosocial Concerns and Coping Strategies for Persons and Families Living with an Inhibitor
September 15, 2023
5:00 PM Eastern, September 15, 2025
The estimated time to complete this activity is 60 minutes.
The purpose of this activity is to enable the learner to address the burden of reduced quality of life that has been documented among persons and families with hemophilia with an inhibitor. This module describes various validated quality of life instruments and patient testimonials to provide insight into differences in both the physical and mental health-related quality of life domains for persons with hemophilia with an inhibitor and their parents/caregivers versus persons with hemophilia without an inhibitor. Highlighting how living with an inhibitor compromises quality of life, the module offers strategies for effective psychosocial interventions to address these issues in persons with hemophilia with an inhibitor and their caregivers and family members. Social workers, nurses, and other healthcare professionals involved in the management of persons with hemophilia with an inhibitor will benefit by learning more about interventions to address reduced quality of life and how to implement such strategies.
The module reviews studies using a variety of validated quality of life instruments to provide insight into differences in both the physical and mental health domains for persons with hemophilia with an inhibitor and their parents/caregivers versus persons with hemophilia without an inhibitor. The module also discusses the differences in health-related quality of life among persons with an inhibitor based on treatment frequency, age, and adherence. It also covers the impact of inhibitors on quality of life of parents/caregivers of persons with hemophilia with an inhibitor, describes a real-time study of health-related quality of life differences on bleed vs nonbleed days, and describes the effect of prophylaxis on persons with an inhibitor. The module concludes with an overview of various strategies to psychosocial interventions in persons with an inhibitor.
This accredited continuing education activity is designed for psychosocial professionals, nurses, nurse practitioners, and other members of the health care team who are involved in the care of individuals with congenital hemophilia who have an inhibitor to clotting factor VIII or IX.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 1.0 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
This activity was planned by and for the healthcare team, and learners will receive 1.0 Interprofessional Continuing Education (IPCE) credit for learning and change.
As a Jointly Accredited Organization, University of Nebraska Medical Center is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. Regulatory boards are the final authority on courses accepted for continuing education credit. Social workers completing this course receive 1.0 clinical continuing education credits. The content level of this activity is advanced.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
23HT00105 Psychosocial Considerations in Bleeding Disorders Care: Aging with Hemophilia
August 29, 2023
5:00 PM Eastern, August 29, 2025
The estimated time to complete this activity is 75 minutes.
The purpose of this activity is to enable learners to provide competent psychosocial support to persons with hemophilia (PWH) as they navigate changes associated with the aging process.
This activity will describe the increasing burden of chronic disease in elderly Americans and the role of extended life expectancy on prevalence of chronic conditions among elderly persons with hemophilia. The activity assesses psychosocial considerations in managing care for elderly persons with hemophilia and recommends practical assessment strategies for use in the Hemophilia Treatment Center environment to optimize care of these individuals.
This accredited continuing education activity is designed for social workers, nurses, and other members of the multidisciplinary comprehensive care team at U.S. federally-recognized hemophilia treatment centers (HTCs) who routinely encounter adult persons with hemophilia (PWH) in need of support to navigate changes associated with the aging process.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 1.25 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
This activity was planned by and for the healthcare team, and learners will receive 1.25 Interprofessional Continuing Education (IPCE) credit for learning and change.
As a Jointly Accredited Organization, University of Nebraska Medical Center is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. Regulatory boards are the final authority on courses accepted for continuing education credit. Social workers completing this course receive 1.25 clinical continuing. The content level of this activity is advanced.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
The Role of the Nurse in Hemophilia Care
The purpose of this module is to familiarize the learner with the critical role nurses play worldwide in the multidisciplinary care team.
While there are some responsibilities that are universal for all nurses, there is also a great deal of variation in the role and responsibilities of nurses in hemophilia care. This learning module describes those roles and responsibilities and some of the variation that may occur throughout the world.
June 18, 2013
This module was created to describe the worldwide variation in the role and responsibilities of nurses in hemophilia care.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
24HT00086 Understanding Hemophilia
July 15, 2024
5:00 PM Eastern, July 15, 2026
The estimated time to complete this activity is 120 minutes.
"Understanding Hemophilia" is a 6-part online learning activity that aims to enable clinicians at U.S. Hemophilia Treatment Centers to gain knowledge and develop expertise on the pathogenesis, inheritance, symptoms, potential complications, and clinical management of hemophilia.
This 6-part online learning activity introduces basic concepts of hemophilia.
Part 1: Pathogenesis & Inheritance examines the coagulation system and processes, the deficit in hemophilia that interferes with clot formation, differences among types of hemophilia, and the sex-linked inheritance pattern of hemophilia.
Part 2: Symptoms & Sequelae distinguishes bleeding patterns and clinical presentation of hemophilia based on severity, differentiates types of bleeding episodes, and discusses physical/psychosocial sequelae of hemophilia.
Part 3: Factor Concentrates & Hemophilia Management discusses episodic and prophylactic management of hemophilia with clotting factor concentrate, different factor therapy protocols, and nursing considerations in administration of clotting factor concentrates.
Part 4: Introduction to Inhibitors explains the immune response and inhibitor development, signs/symptoms and risk factors of inhibitors, the impact of inhibitors on persons with hemophilia, inhibitor treatment strategies and challenges, and the positive health outcomes of immune tolerance induction therapy.
Part 5: Non-Factor Therapies covers gene therapy for hemophilia and the novel agent emicizumab. Gene therapy includes goals of therapy, delivery of gene therapy, eligibility criteria, patient readiness considerations pre- and post-therapy, and long-term follow-up post-therapy.
Part 6: Carrier Considerations reviews hemophilia sex-linked genetics and introduces recommendations for the management of carriers and women with hemophilia, neonatal diagnosis and circumcision in males with hemophilia, and key considerations of postpartum management of carriers and women with hemophilia.
This accredited continuing education activity is designed for physical therapists, nurses, nurse practitioners, social workers and other clinical and non-clinical staff at federally recognized U.S. Hemophilia Treatment Centers who wish to develop an understanding of basic concepts of hemophilia. This activity is particularly appropriate for clinicians within their first six months of employment at an HTC.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 2.0 ANCC contact hour(s). This activity is provided for 0.3 contact hours related to pharmacotherapeutic content. Nurses should only claim credit for the actual time spent participating in the activity.
SOCIAL WORKERS
As a Jointly Accredited Organization, University of Nebraska Medical Center is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. Regulatory boards are the final authority on courses accepted for continuing education credit. Social workers completing this course receive 2 clinical continuing education credits. The content level of this activity is beginner.
PHYSICAL THERAPISTS
This activity is approved for physical therapy continuing education units (CEUs) through the California Physical Therapy Association (CPTA) (Approved for 0.2 CEUs by CPTA #24-215) from May 24, 2024 to May 24, 2025. While many states recognize continuing education credits from CPTA, please verify with your state Board that these credits are acceptable in your state. To learn more about CPTA, visit https://www.ccapta.org.
Partners in Bleeding Disorders Education Programs are currently supported by educational grants from Genentech, a member of the Roche Group; Takeda Pharmaceuticals U.S.A., Inc.; and Novo Nordisk.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
22HT54278 - Advance Care Planning and Advance Directives
August 29, 2022
5:00 PM Eastern, August 29, 2024
The estimated time to complete this activity is 60 minutes.
The activity aims to enable the learner to understand the process of advance care planning, the associated healthcare decision making document aids, and additional resources to assure patient's wishes are elicited and documented in a meaningful manner.
This learning activity provides education on the development of a robust Advance Care Planning (ACP) program and covers the goals, barriers, and enabling strategies to implement an ACP program with patients. This module also offers many ACP resource documents, patient decision aids, and communication tools and techniques for how to facilitate these ACP conversations with patients to honor their wishes when it comes to their goals of care during this period of life.
The content level of this activity is intermediate.
This accredited continuing education activity is designed for physicians, advance practice clinicians, social workers, and nurses caring for patients with bleeding disorders. This activity will additionally target care managers, spiritual care specialists, and other multidisciplinary providers involved in caring for patients with bleeding disorders.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
PHYSICIANS/PHYSICIAN ASSISTANTS
The University of Nebraska Medical Center designates this enduring material for a maximum of 1.0? AMA PRA Category 1 Credit(s)TM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 1.0 ANCC contact hour(s). Nurses should only claim credit for the actual time spent participating in the activity.
SOCIAL WORKERS
As a Jointly Accredited Organization, University of Nebraska Medical Center is approved to offer social work continuing education by the Association of Social Work Boards (ASWB) Approved Continuing Education (ACE) program. Organizations, not individual courses, are approved under this program. Regulatory boards are the final authority on courses accepted for continuing education credit. Social workers completing this course receive 1.0 general continuing education credits.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
Hemophilia 101 for Nonclinical Staff at HTCs (non CE)
This module is designed to provide information about the U.S. federally funded hemophilia treatment center (or HTC) network (referred to as USHTCN) and the multidisciplinary comprehensive care provided at HTCs. The module also reviews the key concepts of data collection and research at HTCs. Providing an overview of the scientific precepts of hemophilia, the module further explains how data and clinical care are integrated and pertinent to the important role of nonclinical staff at HTCs.
This module is designed for nonclinical professionals in the HTC network, including data collection personnel, administrators, HTC staff interacting with 340B programs.
This module is divided into three sections:
Section I covers the U.S. Hemophilia Treatment Center Network (USHTCN) and the multidisciplinary comprehensive care model practiced at HTCs,
Section II reviews the data collection and research at HTCs, and
Section III discusses the clinical and medical issues in hemophilia at a 101 level and the importance of these issues to nonclinical staff.
January 30, 2015
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813, toll-free 877-256-8837, or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
MASAC Pain Initiative Task Force Pain Management Guidelines for Bleeding Disorders
*Please note: this module is no longer provided for continuing education credit.
January 10, 2022
The purpose of this enduring material is to enable the learner to gain knowledge on the opioid guidance document published in early 2020 by the Medical and Scientific Advisory Council (or MASAC).
In this module, there are several aspects of pain management that will be addressed. Foremost is to familiarize you with the MASAC opioid guidance document established in 2020. In addition, we will describe the importance of standardized assessment of pain. This activity will help you to determine goals for pain management and how the roles of each team member can help incorporate non-pharmacological pain management options. Lastly, opioid issues including when and how to start opioids for pain management and monitoring systems that will assist you will be covered in the modules. To enhance the learning, case studies will be examined.
This enduring material is intended for physicians, physician assistants, nurse practitioners, nurses, social workers, physical therapists, and other interested members of the bleeding disorder comprehensive care team.
At the conclusion of this enduring material, the participants should be better able to:
Supported by an educational grant from the National Hemophilia Foundation.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 463-238-1186 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
24HT00085 - Multidisciplinary Bleeding Disorders Comprehensive Care Team: Roles and Responsibilities
April 18, 2024
5:00 PM Eastern, April 17, 2026
The estimated time to complete this enduring material is 45 minutes.
At U.S. Hemophilia Treatment Centers, care is delivered by a multidisciplinary team of health care specialists with expertise in prevention and management of complications of bleeding disorders. Best practice guidelines exist on the ideal composition of this team and expected contributions of each team member. This PartnersPRN online learning activity aims to enable the learner to develop competencies regarding the roles and responsibilities of members of the multidisciplinary bleeding disorders comprehensive care team.
This online learning activity includes content about the roles and responsibilities of members of the core and extended multidisciplinary bleeding disorders comprehensive care teams at federally recognized Hemophilia Treatment Centers (HTCs). These roles and responsibilities are derived from best practice guidelines issued by the Medical and Scientific Advisory Council (MASAC) of the National Bleeding Disorders Foundation (NBDF). Based on these guidelines, the activity identifies core team members as the hematologist, nurse, physical therapist, social worker, as well as a program coordinator, administrative staff, and round-the-clock access to laboratory specialists in a specialized coagulation laboratory. Extended team members include any number of specialists either on HTC staff or by referral to community providers, including dental/oral health professionals, genetic counselors, pharmacists, insurance specialists/financial managers, hepatologists/infection disease specialists, registered dietitians/nutritionists, orthopedists, obstetricians/gynecologists, data managers, and clinical research coordinators.
This accredited continuing education activity is designed for nurses, nurse practitioners, physical therapists, social workers, and other clinical and non-clinical staff at federally recognized U.S. Hemophilia Treatment Centers who require knowledge about the roles and responsibilities of members of the multidisciplinary comprehensive care team.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credit, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 0.75 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, at 463-238-1186 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
23HT00082 - Nutritional Considerations in Common Comorbidities of Hemophilia
May 22, 2023
5:00 PM Eastern, May 22, 2025
The estimated time to complete this activity is 45 minutes.
This activity aims to enable learners to develop competencies regarding the roles and responsibilities of the Registered Dietitian Nutritionist as a member of the multidisciplinary comprehensive care team and to gain knowledge of nutritional considerations in common comorbidities of hemophilia, to include hepatitis C, HIV, iron deficiency anemia, osteoporosis, obesity, and dyslipidemia.
This activity introduces the RDN as a member of the extended hemophilia comprehensive care team at U.S. Hemophilia Treatment Centers (HTCs). Topics include discussion of the roles and responsibilities of the RDN or other qualified individual, components of the nutrition assessment administered by this professional, nutrition objectives and dietary interventions for common comorbidities of hemophilia, and important considerations and discussion points on use of dietary supplements among persons with hemophilia.
This accredited continuing education activity is designed for registered dietitian nutritionists, nurses, physical therapists, social workers, and other members of the multidisciplinary comprehensive care team at U.S. Hemophilia Treatment Centers, or HTCs, who are involved in or support the nutritional health of patients.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credits, you must complete these steps prior to the activity expiration date.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
The University of Nebraska Medical Center designates this activity for 0.75 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 317-871-0011 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
Special Note
Before completing this module, you may want to complete the PartnersPRN online learning activity titled U.S. Hemophilia Treatment Center Network: The Big Picture or if its no longer available on the site, contact Partners partners@ihtc.org for a copy of the PDF slides.
24HT00069 The 340B Pharmacy Program and the HTC
January 10, 2024
5:00 PM Eastern, January 9, 2026
The estimated time to complete this enduring material is 30 minutes.
The purpose of this module is to examine the 340B Pharmacy Program, its role in homecare of hemophilia, eligibility and enrollment, restrictions and requirements, and special considerations for operation of such a program.
As designated in The Veterans Health Care Act of 1992 designated federally-recognized and federally-funded Hemophilia Diagnostic and Treatment Centers (HTCs) as covered entities eligible to participate in the 340B Drug Pricing Program. HTCs were henceforth able to utilize the 340B Program to stretch federal grant funding and develop capacity to provide robust, comprehensive services to all patients served. In 2015 federal grants divided among 140+ HTCs in the U.S. totaled only $4.9 million from Health Resources and Services Administration (HRSA) (to be used for services not covered by insurance) and an additional $5 million from the Centers for Disease Control and Prevention (CDC) (earmarked for surveillance and research).1 Thus, in this era of fiscal constraint brought on by budget cuts and the effects of federal sequestration, HTC participation in the 340B Pharmacy Program has provided a critical means of financial support for HTC services enabling provision of comprehensive care for all patients seen at HTCs with these programs. Approximately 100 of the 140 HTCs participate in the 340B Pharmacy Program.2 As a condition of participation, these centers must invest all revenues from the program back into patient services, care coordination, research and other programs that directly benefit patients.
This module will provide a brief history of?the 340B Pharmacy Program established in 1992 under the Veterans Healthcare Act and the role of these programs in lowering costs of care and providing revenue for the HTC which must be reinvested into programs and services provided directly to HTC patients. For those HTCs in consideration of starting a 340B Pharmacy Program, this module also introduces the Office of Pharmacy Affairs requirements and regulations for such a program, including definitions of key terms and information about the application process, program maintenance, and potential program audits. Finally, this module will recommend the Hemophilia Alliance as a resource for HTCs with 340B Pharmacy Programs as well as those who are interested in learning more about the operation and management of such programs at HTCs.?
This accredited continuing education activity is designed for nurses, pharmacists, pharmacy technicians, and other healthcare professionals in the U.S. Hemophilia Treatment Center (HTC) Network who wish to learn more about establishing and/or managing a 340B Pharmacy Program and the role of these programs in the U.S. HTC Network.
At the conclusion of this activity, the participants should be better able to:
In order to receive continuing education credit, you must complete these steps prior to the activity expiration date.
In order for pharmacists/pharmacy technicians to claim credit for their participation in the activity, completion of the activity evaluation survey with inclusion of birth date (mm/dd) and NABP e-Profile ID # is required. UNMC will ensure that the data is provided to CPE Monitor.
In support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and Partners in Bleeding Disorders Education Program. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
PHARMACISTS (PharmDs/RPhs) AND PHARMACY TECHNICIANS
The University of Nebraska Medical Center designates this activity for 0.5 ACPE contact hours. Pharmacists/Pharmacy Technicians should claim only the credit commensurate with the extent of their participation in the activity.?UAN # JA0000319-9999-24-004-H03-P / UAN # JA0000319-9999-24-004-H03-T
NURSES/NURSE PRACTITIONERS
The University of Nebraska Medical Center designates this activity for 0.5 ANCC contact hours. Nurses should only claim credit for the actual time spent participating in the activity.
Supported by an educational grant from Takeda Pharmaceuticals U.S.A., Inc.
If you have any questions about this activity, please contact Brooke Hernandez in Indianapolis, IN, 463-238-1186 ext. 813 or via email at bhernandez@ihtc.org. For technical support please email support@partnersprn.org or open a ticket in the Partners Support Center.
The Partners in Bleeding Disorders Education Program is supported by educational grants from Takeda Pharmaceuticals U.S.A., Inc; Genentech, a member of the Roche Group; National Bleeding Disorders Foundation (NBDF); and the Hemophilia Alliance.
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