News

Improving Access to Care Through Outreach | Nov 2020

Improving Access to Care Through Outreach is the latest continuing education module available on the PartnersPRN website!

This online learning activity introduces outreach as a model of care, including telemedicine, and reviews logistical and cost considerations associated with planning an outreach clinic. Two detailed case studies enable the learner to apply information gained through this activity.

All staff employed within the U.S. Hemophilia Treatment Center Network are invited to participate in this module. The content is also appropriate for hospital or institutional staff responsible for planning and managing outreach programs for persons with bleeding disorders are also invited to participate.

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center’s Commission on Accreditation.

This activity is provided for 1.0 contact hours under ANCC criteria.

The Indiana Hemophilia and Thrombosis Center is an approved provider of continuing social work education by the NASW CE Approval Program (Provider #886604222).

This program is Approved by the National Association of Social Workers (Approval # 886604222-7940) for 1 continuing education contact hours.

Click on the Online Education tab for more information on this complimentary continuing education module!

2021 Live/Virtual Partners Programs Open!

The 2021 line up of Partners in Bleeding Disorders Education live/virtual events are open for registration! Head over to the Live Events tab and sign up today! Seats fill up fast so don't delay. We look forward to seeing you virtually or in person at one of these awesome events! Please note that some events currently planned as in person could be changed to virtual in order to reduce the risk of COVID-19 exposure among participants and faculty.

New Partners CE Activity on Sports and Physical Activity in Moderate and Severe Hemophilia | Sept 2020

The Partners in Bleeding Disorders Education Program recently launched a new online learning module Sports and Physical Activity in Moderate and Severe Hemophilia.

This online learning activity utilizes a brief literature review, case studies, and interactive questions to describe evolving perspectives on participation in sports and physical activity among persons with hemophilia, the benefits of participation and potential for injury in these activities, considerations in management of patients with hemophilia who participate in sports and physical activity, and selection of appropriate activities for persons with hemophilia.

The activity is intended for nurses, nurse practitioners, physical therapists, and other members of the multidisciplinary hemophilia comprehensive care team employed at federally recognized U.S. Hemophilia Treatment Centers who treat patients with moderate and severe hemophilia and require enhanced knowledge of recommendations and considerations for sports and physical activity participation in these patients.

The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited with distinction as a provider of nursing continuing professional development by the American Nurses Credentialing Center's Commission on Accreditation.

This activity is approved for physical therapy continuing education units (CEUs) through the California Physical Therapy Association (CPTA).

Click on the Online Education tab for more information and to participate in the activity today!

New Partners Module Explores Home Treatment Logs

The Partners in Bleeding Disorders Education Program is pleased to announce the launch of a new online learning module Accounting for Home Care: The Role of Treatment Logs in Bleeding Disorders Self-Management.

Healthcare providers who complete the activity will learn about the important role of log-keeping for the home treatment of hemophilia patients; the different type logs available along with their respective features; and patient/provider viewpoints on the use of such tools. The clinical and research application of treatment logs will also be covered in this module.

The target audience for this activity includes nurses, nurse practitioners, and other multidisciplinary hemophilia treatment center staff engaged in the care of persons with bleeding disorders who utilize home treatment to manage or prevent bleeding episodes.

Click on the Online Education tab to participate in the activity today!

Hemophilia in History: A Two-part CE Activity | June 2020

PartnersPRN announces the release of two new modules that focus on the history of hemophilia.

Hemophilia in History I: Early Accounts and Interventions includes discussion of the historical figures and events in early conceptions of hemophilia as a heritable bleeding diathesis, the first models of coagulation, unproven attempts to treat the condition, the appearance of hemophilia in the royal families of Europe, and the discoveries that led to our modern conception of and treatment products for hemophilia.

Hemophilia in History II: Factor Concentrates and Foundations of Comprehensive Care includes discussion of the early development and evolution of clotting factor concentrates, the infectious disease contamination of the U.S. blood supply and its toll on the hemophilia community, as well as legislation that passed in the wake of the hepatitis and HIV epidemics. The activity also examines the hemophilia treatment center model of care. Finally, the module discusses the role of a safe blood supply, care from HTCs, and use of prophylactic therapy in prolonging life expectancy and enabling persons with hemophilia to lead increasingly normal lives.

Knowledge gained from these activities is expected to enhance compassion of hemophilia providers toward patients and to facilitate high quality care. Each module features an interactive timeline that allows you to explore the history of hemophilia at your own pace! You do not need to view both modules in order to earn continuing nursing professional development credit!

Click the Online Education tab above to participate!

Three New CE Activities about Sickle Cell Disease | May 2020

PartnersPRN is pleased to announce the launch of three new modules about sickle cell disease (SCD).

The title of the modules are: Hydroxyurea for the Treatment of Sickle Cell Disease, Comprehensive Care of Adolescents and Young Adults with Sickle Cell Disease, and Best Transition Practices for Adolescents and Young Adults with Sickle Cell Disease.

Nurses, nurse practitioners, physician assistants, and other health care providers who treat persons with SCD or providers interested in learning more about SCD will find these modules beneficial.

All three modules are approved for ANCC contact hours and American Academy of Physician Assistants (AAPA) Category 1 CME credits! For more information or to view the modules today, click the Online Education tab above!

Thank You to HTCs

Thank You to HTCs

They've stood by us on some of our most frightening days.

Time and again, they prove their dedication to our health.  We can thrive because of the expertise and compassion they demonstrate at every visit, every follow-up call, every email in which we ask for their advice.

To the medical professionals comprising Hemophilia Treatment Centers (HTCs) across the U.S., we offer our deepest gratitude. They are our heroes. We thank them for fighting for the health of the bleeding disorders community alongside every one of us.

Sign your name here to show your support of the HTC staff keeping us healthy and safe.