News

MASAC Pain Initiative Task Force Pain Management Guidelines for Bleeding Disorders | January 2022

Partners in Bleeding Disorders Education is pleased to announce the release of a 4-part continuing medical education series on MASAC Pain Management Guidelines for Bleeding Disorders. This module will enable you to gain knowledge on the opioid guidance document published in early 2020 by the Medical and Scientific Advisory Council (MASAC). The MASAC Opioid guidance document was created by The Pain Initiative Task Force, a multidisciplinary committee of the National Hemophilia Foundation (NHF). This document was fashioned from the Center for Disease Control and Prevention (CDC).

The 4-part module series is divided into the following segments based on the MASAC opioid guidance document: • Part A: Screening & Risk Assessment • Part B: Determining When to Initiate or Continue Opioids • Part C: Opioid Selection, Dosage, Duration and Other Considerations • Part D: Opioid Monitoring and Tapering or Discontinuation; as well as special considerations related to opioid pain management

These activities are intended for multidisciplinary providers at hemophilia treatment centers, including physicians, nurse practitioners, nurses, physician assistants, social workers, physical therapists, and other members of the bleeding disorder comprehensive care team.

The activity provides continuing education credit for physicians, nurses, social workers, and physical therapists.

For more information or to view the modules today, click the Online Education tab above!

Gene Therapy for Providers Education | Dec 2021

Partners in Bleeding Disorders Education is pleased to announce the release of a 3-part continuing medical education series on the use of gene therapy for hemophilia. This series was a collaboration with the American Thrombosis & Hemostasis Network (ATHN) and partially supported by the National Hemophilia Foundation.

Gene Therapy for Providers 101 provides basic education on hemophilia gene therapy, including the aims of gene therapy, the packaging, delivery, and activity of the replacement genes; and how the replacement genes lead to production and/or availability of normal clotting factor in persons with hemophilia. Gene Therapy for Providers 201 is a process-oriented intermediate activity that will guide HTC multidisciplinary staff and institutional stakeholders to gain knowledge on the steps necessary to prepare an institution to administer AAV-mediated gene therapy for hemophilia. Gene Therapy for Providers 301 is a process-oriented activity that will enable HTC multidisciplinary staff and hospital staff to support patients and their families as they consider hemophilia gene therapy, including education of patients and families on basic concepts in hemophilia gene therapy; administrative preparedness for providers; and short- and long-term care demands.

These activities are intended for multidisciplinary providers at hemophilia treatment centers, including nurses, physicians, pharmacists, physical therapists, social workers, and genetic counselors providing care to persons with hemophilia A and hemophilia B.

The activity provides continuing education credit for physicians, physician assistant, pharmacists, nurse practitioners, and nurses. Click on the Online Education tab above for the full accreditation information and participate in all 3 activities today!

2022 Live/Virtual Partners Programs Open!

The 2022 line up of Partners in Bleeding Disorders Education live/virtual events are open for registration! Head over to the Live Events tab and sign up today! Seats fill up fast so don't delay. We look forward to seeing you virtually or in person at one of these awesome events! Please note that some events currently planned as in person could be changed to virtual in order to reduce the risk of COVID-19 exposure among participants and faculty.

A School Nurse's Guide to Sickle Cell Disease | August 2021

Partners in Bleeding Disorders Education posted a new online continuing education opportunity under the School Nurse Education category!

A School Nurse's Guide to Sickle Cell Disease presents the causes, disease traits, inheritance, and symptoms of sickle cell disease (SCD). In addition, common problems and complications of SCD including pain, stroke, priapism, acute chest syndrome, infection, bone disease, eye disease, and other health problems will be provided. Strategies and special accommodations that can be used in the school setting are also provided.

This enduring material is intended for professional school nurses in schools attended by a child with SCD, teachers, physical education teachers, administrators and guidance counselors, and other school staff or health care professionals who require an introduction to school-related considerations for students with SCD.

The activity provides continuing education credit for nurses. Click on the Online Education tab above for the full accreditation information and participate in the activity today!

Two New Modules Released! | June 2021

Physical Therapy in the Care of Persons with Bleeding Disorders and Physical Therapy and Comprehensive Care were released on June 15, 2021.

These activities were created for physical therapists, physical therapist assistants, nurses, nurse practitioners, and other health care providers who are involved with the federally recognized U.S. Hemophilia Treatment Center, or HTC, network or otherwise engaged in comprehensive care and/or physical therapy management of individuals with hemophilia and other bleeding disorders.

The activities assumes the learner possess fundamental knowledge of the musculoskeletal and neurological systems and a basic understanding of bleeding disorders and the comprehensive care model. Learners who do not meet these criteria are encouraged to view the PartnersPRN activity Understanding Hemophilia prior to completion of the physical therapy activities.

Both activities are provided for continuing education credits for physical therapists and nurses. Click on the Online Education tab above for the full accreditation information and participate in these activities today!

Sickle Cell Disease Modules for CME and ANCC Credit | May 2021

Three modules about sickle cell disease have been renewed for the American Academy of Physician Assistants (AAPA) Category 1 CME credits! The modules are also provided for ANCC contact hours.

The title of the modules are: Hydroxyurea for the Treatment of Sickle Cell Disease, Comprehensive Care of Adolescents and Young Adults with Sickle Cell Disease, and Best Transition Practices for Adolescents and Young Adults with Sickle Cell Disease.

Nurses, nurse practitioners, physician assistants, and other health care providers who treat persons with SCD or providers interested in learning more about SCD will find these modules beneficial.

For more information or to view the modules today, click the Online Education tab above!

VWD Guidelines: Hot Off The Press!

On January 12, 2021, new guidelines on the diagnosis and management of von Willebrand disease were published in the journal Blood Advances. A collaboration of the American Society of Hematology (ASH), International Society on Thrombosis and Haemostasis (ISTH), National Hemophilia Foundation (NHF), and World Federation of Hemophilia (WFH), these guidelines are intended to meet the need for evidence-based recommendations that help navigate the clinical complexities and technical challenges of diagnosis and management of VWD. Access the VWD diagnosis and management guidelines.

ASH Clinical Practice Guidelines:

There’s An App for That!

The ASH Clinical Practice Guidelines App provides easy access to the complete guidelines, including rationale for each recommendation, benefits and harms associated with each recommended course of action, and links to the complete evidence-to-decision tables used to develop the recommendations. The “ASH Practice Guidelines” app can be downloaded for iPhone and for Android. The app is also available via web interface.